Hey Ada,

Thanks babe. How are you? how is the stim working out ? I have been keeping my fingers crossed for you! I hope the immunologist can help you with the CFS. I was worrying about you because you have gone so quiet.

I hate hospitals. I just re read my post and realised how down/ depressed it sounded. I guess I'm just frustrated with going downhill. Things will improve but if I go into hospital they will just make me worse. I am yet to go into hospital and come out better than I went in and I hate being prodded and poked by drs!

Love ya

Frogga xxxxxxxxx

I do know what you mean about hospitals. I can't stay in one as long as they want me to when I go in. I have panic attacks after a few days in them. My PCP springs me from them before my time is up. He tells the Surgeons if he has to come to my house to take care of me he will. I get hysterical in them I have also been overdose with Methadone in the hospital before.

I was just thinking with you being in the shape you are in, I think you need really good care to get better. It does depend on how good the hospital is also. It sounds like you have had your share of bad experiences in them too.

As far as the stimulator, we are going to turn it up tomorrow evening. I am scared. I have put it off now for over a month due to what it's doing to my voice and breathing. I can't yell at anyone because my voice keeps going down. LOL It goes down every time the machine goes off which is 30 seconds out of every minute. I still have to have it turned up 3 more times.

I lost my magnet that turns it off and Susan found it today. I swear I can't keep up with anything. I have wiped out the color on two tv's so far.

As far as the depression, so far it's not helping but the CFS and everything else has made the depression worse.

I got an appt. with the Immuneologist next Wed. I hope they can maybe find what's going on with me that makes my body shut down.

You have reason to be depressed and we all go through it so don't worry about how you sound, believe me I have sounded worse at times.

I hope that hospital bed is more comfortable then the ones in the hospital. That's another thing I can't stand in the hospitals. With the TOS I can't lay in one any length of time.

I'm glad you are out where you can talk to people and not be alone so much too, maybe that will help you with some of the depression.

Hang in there,
Ada

Oh Rosie. I'm very sorry but I must cross the atlantic and string your sister up by her ears and tose to a large oak limb Honestly ! I'm seeeeeeeeeething! I disagree with your assessment that she doesn't care. She obviously does care, care enough to be malevolent and manipulative. WOT a beeeotch. Really, she is being quite abusive.
Where is your Ben, the original Ben? If he knew how dreadfully you are being treated, I like to think he would spring on his chariot and ride to your rescue. I bet he would. He sounds very wonderful.
I am so glad you have your bed now. FInd some local electronics students and let them attach James BOndian gadgets so you can zap your evil sister when she does wretched things. The Hoist-Snatcher, the Bed Electri-Fryer, things of that Nature.
Myself? Pretty bad slide at moment, wracked by aggressive mood compulsions which may lead to getting tossed out of my job.;.... nothing new. Pain a medium-high level. A 3 hour massage and slow bake for 3 hours on a tropical beach with frozen margarita might help. Also helpful would be a car that functioned, finding my eyeglasses that my bad doggie hid somewhere, having my stupid bodd get hit by a bus, having my friend be cured of RSD now that dystonia is suddenly moved into her jaw, etc etc blah blah blah pass the chocolate please!
I did storm into my therapists appointment this morning, and demand that all my health care providers stop telling me I was merely bonkers, but they start doing a few actually TESTS and start to assess some of the BIOLOGY of my pain and fatigue and mental deterioration. I've been saying this quietly for oh, 15 years, but apparently not assertively enough. So now I am going to have a full battery of IQ tests and memory tests, etc. I'll probably have a lot of it done at an Alzheimers clinic! So i can learn even more about brain atrophy. Fun stuff to share.
send news of your mates. have you contacted them yet per my bossy insructions?!

Hey Frogga,
I have some extra spoons now and should have more later on. You can have all my extras, but I'm not sure you are allowed more than 12 at a time. We'll have to check the rules. Love You Hope

Hi Frogga,
Sorry, I haven't been on the board for awhile & I missed your post. I hope your situation is improving & you have someone other than your sister & her boyfriend to assist you. It's unfortunate that some family members can be so self-centered. I know because I have some but I'm fortunate in that I don't have to rely on them. Planning a trip sounds really nice. I've been thinking Hawaii for 6 months, even ordered checks that resembled Hawaii. No real plans but the thought makes me feel better. I hope & pray that your condition improves really soon.
Linmarie

Hi!

Linmarie - Hawaii makes everybody feel better, I'm green with envy..

Frogga - I know you're from a nursing family, but I have to say it, your sister sounds like the British Standard Nurse from Hell. I'm absolutely gobsmacked (good old brit word, lol) at her behaviour, I really am speechless. Sounds like Colditz on wheels. I would like to grab her and smack her into the middle of next week.

Better shut up now, before I have apoplexy
all the best

Oh my goodness, Frogga! I have to agree with Artist here! Your sister is very cruel to treat you with such bad behavior! She knew you were a vegetarian and still cooked you meat?? she walked away from you and said this and that! I'm sorry but I would "Beeothch slap her into "Kingdom" come if I could figure out where kingdom come is!! I am so sorry that you are receiving such dreaded care, my friend! Gosh, If I was there with you, I would help. I so miss my job. (I took care of the elderly, bed ridden with altzimers) don't think I spelled that right. Anyway, Sweetie, I'm praying real hard for a caring, gentle care giver who would just for 5 min. put herself in your shoes, Frogga! Love and so many hugs, Dear one. Love, Desi

Frogga,
Your sister sounds horrible. Self centered and completely involved with only herself. Of course, you could "accidentally" spill some slippery stuff on the floor then ask her for something. If she should slip and hurt her butt...Oh well, maybe some pain is needed. Of course, I never recommend anything like this, but you know..loll. One can daydream. Just keep in mind that her being your sister is only a biological accident. You never got to fill out an application as to the type of sister you would like. You know the saying..what goes around comes around. Hope you mum gets home soon.
Mary

I am a veggie also, and if I know where to get take outs near where you lived I would call them and order you some decent food and charge it to my American Express, I am that mad at the way you have been abused!! Please know we care and I am sending you gentle hugs, If you pm me your address I'll send you some treats. Carose

Hey Frogga,

Now that *would* get the message across, if you started receiving Care Packages from the States, just like in the Second World War, lol!

Hope you mum's locked your sister up, on bread and water...
all the best