Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-27-2007, 08:19 AM #1
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WOOHOO!! house party at mine a go go then! Don't worry Rogue, I will make Molly, S and unrouley do the cleaning before you arrive so you can't pick up too many infections from any of the babies (2 dogs, 4 cats), but I have a spare hospital bed - though we may end up top to tailing! Molls, I'm sorry that you will have to let unrouley cook! I don't really eat properly since the RSD either.. (sending you a virtual bone to knaw on).

Allen, are you still up for it? Anyone else fancy a quick trip across here?

Mollsy - S was right about the maternal ballet dancing - she believes if we don't do it then my joints will fuse. She doesn't get they ARE fused and will not understand why they can't be bent back. Mum gets so frustrated she has been known to jump onto my legs to try and get them moving - I swear she took lessons from that nurse who created the heat treatment for polio (to reduce deformities through use of heat and strength by trying to break the spasm and then keep in the correct position).

And hey, if any of you need nursing care, I have mum AND Char and they are as bad as each other for dealing with RSD.

See you all soon!!

Love ya

Froggsy xxxxxxxxxxxxx
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Old 06-27-2007, 09:51 PM #2
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Smile Mad Mums, RSD Bibliography, Perfection enemy of the good?

I'm speechless. This is a rare occurrence...
I am a former ballet dancer [as you might guess by my avatar] and I do solemnly swear that it is NOT supposed to involve Mad Mums pouncing up and down and twirling unbendable bits. [you're supposed to do that to yourself, for Love Of Art! Ergo, in ballet masochism is OK, but sadism is not.]
About the ketamine pump... I will look in my unwieldy article database to see if there's anything... Speaking of my database; do you think I should just post my outsized RSD bibliography in the Resources section of Neurotalk RSD and let folks read through it (with Abstracts)? I keep fiddling with the Biblio trying to make it perfectly searchable with Index, Table of Contents, etc... but maybe I should just post it as is? it's rather excessive: about 900 medical/ scientific articles. but maybe perfection is the enemy of the good and i should just get it all out there to you?
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Old 06-28-2007, 02:55 AM #3
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Arrow Ready to Rock and Roll!

I will bring the only musical instrument I know how to play, Am/Fm radio

/stakes out a prime real estate location on the floor
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Old 06-28-2007, 05:05 AM #4
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Okydoke Allen, you get the dog bed then :P It'll be lovely and warm and it's all padded up! Then you can get yourself some floor space!

At this rate we'll have a small band going!! just need to persuade IHH to bring the cello and we're sorted!!!

love ya hun and hope things are going well for you!!

Froggsy xxxxxxxxx
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Old 06-28-2007, 02:06 PM #5
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Can I come to the party, my dear?!

Start doing better... I am so disappointed for you about the pump... I wish you could have gotten it. But hoping and praying the nortriptyline will help you... the ami helps me a little some nights.

Love ya!!
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Old 06-28-2007, 02:19 PM #6
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hang on IHH - they said he couldn't do it but he is referring me to another dr that does do them... I'm sure that's what I said but I am so tired at the moment it could be rubbish! will run and check in 2 seconds!!

How are you doing my darling?

Of course you can come... that would be awesome!!!

Love ya sweetie! xxxxxxxxx
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Old 06-28-2007, 02:26 PM #7
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Quote:
Originally Posted by frogga View Post
hang on IHH - they said he couldn't do it but he is referring me to another dr that does do them... I'm sure that's what I said but I am so tired at the moment it could be rubbish! will run and check in 2 seconds!!

How are you doing my darling?

Of course you can come... that would be awesome!!!

Love ya sweetie! xxxxxxxxx
Oh!! My mistake!, sorry about that- I am in a brain fog... Glad it MIGHT be a choice!

Not doing too well... just emailed you though!

Cool!! Really would be awesome!
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