I have a great primary dr but CT OR MRI years fully blood test a few months a think I am having a hard time thinking and puttings things in the right way even writting emails my son said they are not making the same sence as before it sounds like it to me and when I email if I read them back its not. Its hard to find good care here drs are leaving to much to live here its hard. I dont know Jo55 I fill stuck i went to UCLA in Calif teaching hosptial but that was 3 yrs ago they said they same thing my pain dr a different dr then my prim dr said I have RSd and its bad and moving fast and they wouldnt do anything ealse I dont know ......I just want help if I can get some kind my birthmom a yr ago I meet her she has fibro. and I have a half sister in a chair to but she couldnt talk about it and I have been in my chair 3 yrs. and still have my walking ahahhahhacast on after 4 yrs no bone left.............Karen

Thank you very much..................How are you? ................Gentle Hugs

Karen I am here for you to

Hi Kitti, I hope you are feeling a bit better today.

I agree with Nikon, the lidoderm patches help a lot. I have only started using them recently, and now that I do, I am mad at the Dr.s for not suggesting them sooner! As a matter of fact, they didn't think of them at all, I got some from a friend who didn't use hers, and I loved them. I asked for a rx, and the Dr. was happy to oblige as they aren't an addictive narcotic like just about everything else they give me, lol.

Kitti, as far as the weight goes... I am an aids patient, and know all about that! My suggestions are #1) Ask the Dr.s for Marinol. It's a synthetic pot pill, and will help you feel much better. You'll actually feel like eating!
#2) Get an Rx for Boost, Ensure, whichever one is available in your area. It's a little mini milk shake kind of thing, easy to drink and packed full of everything you need to survive. They're a huge help to me, I think you'd benefit from them too.

I am sending extra gentle

Thank you for taking the time to email me unfortally I have been on the patches Lidoderm from day one and they haven't helped me. Not even a pinch I am on pain (FentylePatches) for 13 yrs I dont know if thats it or what .I wish they did. I would do anything at this point. I hated saying that they didnt help at all because Im so feed up but I keep trying like everyone does. and I also hate to say this to they took my part of of intestisnt that takes they food or drink and divides all the stuff and they removed that so I have tried all the differnt drinks and anything liquid or not and its usually out of my system within 20 minutes i asked about a transplant they said because it tissue I would have to have all stomach liver, bladder transplant and they dont want to take a chance so I do really oh really understand but I am going to try again I try drinking all different ones even the ones from the dr about every year because maybe one time something will be it. I will let you know . I thank you so much for trying to help me please if you here of anything keep in touch with me and even you dont please keep in touch......

Gentle hugs and sweet dreams

wishing you the best karen

I have you in my thoughts and prayers. I hope all goes well!~ and you get better real quick! Dont give up!!! If I cant then you cant either!!!! Ill fight with you!!! emai me anytime, I had another bad night, they increased my avinza again today. I am only 26 and I am not giving up either....

Hi Karen! I agree with Jo on this! you need to have a complete work up. I just had mine all done. Also those ER doc's don't know nothing, it's best to see a specialist. Get yourself some of that "ensure drink" to help ya put on some weight. Are you seeing any type of neurologist? If so, what does he/ she say? I am keeping you in prayer sweetie. ((big Hugs Karen)) Love, Desi

Hi Dana,
Thank you, You said you ware 26 and not either giving up ,When I was 27 I had a bad sugery and shouldnt of lived but I did I faught throught and why to have this RSd. But now I (we) are going to fight this togther. Im not going to give up and you said you are not going to give up and I thank you because we will diffently not going to give up and together. You fight I fight we will fight togther............But I am not going to be here for you just this I am here to vent because I vent to people here so I want you to know go ahead and vent to me if you will and feel good about it. Im here so please do.

Thank you for making time to email me when Im introuble I spent the day in the ER on Wed because of headachs ,numbness in my face and because of not being able to see .I went through to two different pain shots and still having the same problem and Im scared nothing has changd the ER Dr said he thinks its just a headach but my reguarler dr said that I need a CT and MRI scan. But Im not going to give up and you are not either and Im so glad that we can now do this together . Use me for any help you need fell like you need a little or big help get though something email me and we will fight together. We are NOT ALONE we WILL FIGHT TOGETHER !!!!!!!!!!

Thank you again for caring and your email and remeber Im here always email me anytime PLEASE.............................

Take Care
Best wishes GENTLE HUGS

Karen

Thank you everyone that has been helping me..........I went to the ER oon Wed. spent hours two ddifferent pain shotsbecause of my vision problems and face numbness and headaches . My mom asked Karen do you need to go to the ER I said finally yes I do Im really sick. She took me no test was done they just gave me two different shots NO MRI OR CT. I went right to my dr because my son had an appt she saw him than I said I need to talk I told her and said what test did they run i said nothing just gave me shots I feel alseep from the pain before leaving my drive away my mom said to the hospital and slept in the ER she sat with my son and I slept after the shots but everytime I woke up PAIN !!!!!! So my DR when I saw her she said get me a CT ,MRI . She is worried she doesnt know if its RSD or something ealse she doesnt know much about RSD so she is going to be sending me for the scanes and she is going to try to get me into the best Neuro dr thats here I hope SO THANK YOU EVERYONE that has told me that they are worried and what I should ask for to be done Nothing has changed with me feeling better but I hope they can find out soon I am just not going to give up but Im just noy well yet.....

Thank you evertone.

Karen
Gentle Hugs to everyone

Karen
I'm so glad to hear you're fighting this thing and getting the tests done...hang in there
Jeanne

Thank you for all the help. Its Thur now and Im sicker. More headaches bad the wose. Worse than the day before,more nubness and and now I have chest pain I have heart problem before but I was doing well intil today and I can only see color still Im really sick. I sould be in the hospital today but Im holding on does anyone ealse have of these things or all? Please let me knowI havent been so sick like thi before I thought I was before but no not intil all of thse things together. So can anyone tell me it is rsd ?