Karen, I keep on pushing you to PLEASE have a neuroligist give you a complete series of tests! Also, get you heart checked too. you need an MRI, CAT(Scan of your head).please, know that I am not trying to scare you, I am concerned about your headaches NOT getting better, but worse. Karen, your body is trying to tell you something with all this pain, not being able to see,numbnes,etc. you say your getting worse, and now your chest hurts, I think you should be admitted into the hospital where they can keep a close eye and run a series of tests, and a complete blood work up. You hang in there, Karen and Please get those tests run.. STAT.. I will be praying for you. Love, Desi

Thank you I know you are not scaeing me I am already scared.its Monday the 4th and Im not getting any better. I keep calling the drs they say go to thr ER well they dont do anything because they dont know what to do Thwey just keep giving me pain meds that dont work .Today I took my tmp like I have everyday before it was 97.4 tonight 99.5and I slept into 4:00 pm . my son went bak to school from his inury from school he missed 3 weeks so I juess I finally really slept I dont feel sick like the flu My head is bad and face is still numb and the vision is the same ,my heart beat is better but Im having a hard time breathing . I sometimes have to take in deep breathes and it makes my head worse .I keep telling the (my) dr and I get nothing I will end up in the hospital because of fever and than maybe they will do something I dont have the flu I dont feel sick Every inch of my skin which i haaad from the RSD hurts but it hurts even more and my bones hurt every inch hurts I cant stand this I even called my mother crying telling her that I need more help and she is helping me with my son taking him to school andstudying for finals since he cant write and do alot since his write shoulder was the one that has been injueryeed but it doent look like he needs sugery on his shoulder but we will know more in a month the dr said. So she my mom has been helping me with him but Im falling in the crackes I dont know what to do.......The pain was horrible I cant handle it right anymore with all these things. I AGREE with you totally I cant seem to get any help I called my mom tonight and told her that I need her to call my drs and matbe is can get some where tomarrow because Im not...............So I will let you and everyone know.................

Sorry you are having so much pain. No amount of pain med will ease this pain. It just helps me to not care so much

I also use lidoderm patches but mine contain Ketamine also. It helps me with the burning on the bottom of my feet. I leave mine on 24 hours/day as the doc said it won't hurt to do that. I've even worn 3 when I'm desperate

Wishing relief and help comes along soon.
Hope

HopeLivesHere,
I have the lidoderm also but it use to work or made it more covertable at the beginning and when it went to full body the drs and I cant seem to find anything that would just take the egde off thats all I would like at all. I didnt know that you can get some with Ketamine .I was going to go out of the counrty and do the coma ketamine but I cant right know is it like that the same mediacation ? I will ask my dr about the kind with the ketamine in with iw. thank you I hadnt ever heard of it before.So thank you very much..Karen

rsd kitti---so sorry you are feeling so bad..i too have the intense burning of the feet..it started on my left ankle ,after a fall in the shower during my vertigo fun, now has spread to the other foot..nothing seems to make it any better..and they are not even sure what it is from(rsd,fibro,arthritis???) so many questions/no answers...very frustrating and very hard to walk (esp. with any type of footwear) if you get any answers or anything you find that at least relieves it some--please let me know--i am losing this battle quickly and am still awake at 5am,due to the pain,and have to be up at 7am to put brother on bus--and watch my friend's 4 month old baby so she can work--probably not much longer--as the baby loves to be carried and it is so hard to walk--AGHAGHAGH--MOONSTAR

Have you gone to a pain specialist? I was told that I have RSD within a few months after I broke my foot in 5 places fall down two steps that were not there it happened at my brothers house who is which an artic. and contractor and I'm into June 14th will be 4 years that we will be the hardest day besides I hate to tell you if you dont know that Im in a wheelchair I only have a couple of pics of me in a chair because intil a month ago when my health has changed even more I couldnt hide it anymore I have full body RSD Im 39 and raising a teen boy and got divorced in the middle Im a hospic Nurse Im ex husband is an officer and nurse but he couldnt deal plus other things and Im having vision problems Im seeing color thats it and numbness halve my face .I would ask you if you have seen a pain specialist because they dont look at you like you are crazy which you are not..............dont ever think that a lot of people say that lidoocane pacthes help that didnt for me its supposre to work for 12 hours at a time I havent walked since the day of my accident 20 minutes after getting to my brothers and we didnt want to go we did for m son so he could see his family so it was a accident I will let you know if anything had helped I wish you well I was wondering if you have tried injections and if you have tried lidocane drip.Let me know what you have tried Im like you I havent slept normally for 4 yrs it was etter when I was dating a man for a year he is wonderful he moved to out of state with out us we were going to go with him I dont know what happened I saw him in Dec he spent Chrisymas sperise us and I went in Jan 24 red long stem roses for V-day and the last day in Feb that was it I talked to him He was going to call me back never again we talked at least 3 times or more a day we had a special relationship he taught me to drive left foot and do things that I can do but to remember that I still have limations , and that he carried me to the ocean so i could be with our kids his and mine and then he rented a chair for the sand I live on the central coast in Calif. I hadnt felt water or sand in at least 4 years so try not to stop if you are still walking try not to stop doing things that you like to do I know you are in horrible pain we both live the same hours alot of us do please let me know what you are on meds and you have tried I cant help you as a nurse but I will try to help you as a person that is living live that is so hard. Im up the same hours you are up also. Do you live in Calif? If I can think of anything I will let you know because Im I say falling because thats what it feels like to me. Please let me know how you are doing and please keep me informed and I will let you know if there is anything that is helping me nothing so far has helpedd alot but I have done and tried so many things stimaltors and pump injections I was going to go out of the Counrty to try the coma kiamine but I ran out of money from my divorce but I have been thinking about selling my house but it hard speially that no dr in calif does the shots and you have to have a dr that does it in order for them to do it I was moving to Oregon but thats where we were moving together to and I we did the reacher there but live has to move on I guess. Its one of the hardest thing I have had to do in my 39yrs even more then natural 23 hours of child birth. But I am here to help as much as I can everyone has given me so much here. Do you have myspace ? I have it and I finally opened the doors and told people that is how I meet the guy I was with and we only lived 7 minutes away from each other I kept only 12 friends and since March and my son when he was 14 he is 15 now he had or asked me to write about RSD on my blog so I did but becuse I hae written about how I feel you can see it all and also on my page their is more than half of the people have RSD and there is group that will help you also let me know and I will give you my web site. Please keep in touch with me I would like to hear from you and let you know some other groups . Can I put you on my friends list here to so we can keep in touch ......

I wish you well and I cant work anymore so I understand how it feels totally losing yourself but try not to it has taken me this long with the great people here to make me feel like Im still Karen but I still have lost of bad days but I come here and somebody is always here and they help e through it even if its just hang in there I care and Im here for you.........So rememeber those words because Im here for you through your pain and happeness through your cry and smiles Im here everyone is.............................I think we can became real good friends

Gentle Hugs
Karen Email me anytime.................

Hang in there, Sweetie!!

Did your son find any of those carer sites helpful?

I am thinking of you and praying for you!! Sorry things have been so rough on you, I sure hope things get improving soon. I would give you an extra spoon, but lately I haven't had enough myself. I know what you are going through as far as pain, and hiding the fact that you are going through so much pain.

Sorry, I mixed up the ID's here... I meant to put "Hope" in the title! DUH?

Can you tell me more about the Lidoderm patches with ketamine? I'd like to research that. Thanks...

Also I'd worry about so much lidocaine 24hrs/day. The patches should put the nerves to sleep for a while, as you
take them off for 12 hrs. Continuous application can affect the heart, you know. I could not find documentation that it is
safe to use them that way.

BTW I have burning feet too, and find that the patches work better for me,
on the tops of the feet. Have you tried that way?

hey karen...you are going thru so much all at the same time..and still are being so strong--friends??yes we definetly can do that..i am not in calif.--in ny..but what is distance betwen friends???
as far as pain drs.. i went to one who was a complete jerk and dismissed me in not more than 15 min.-i see 2 neurologists,2 orthopedics(one of which gives me all my pain meds) i have consulted with 3 pain specialists who tell me that i have been given every treatment by my other docs that they would have done..soo in other words don't bother (or bother them is the attitude i got) i was on soooo many different medications(that didn't really work) i am currently taking: oxycontin,lyrica,vicoden es,lidoderm patches and zanex...i was on oh so many types of antidepressants with no results so i flushed them--went to a psychiatrist who put me on prozac and just kept on increasing the dosage,again with no help, he was so far away from my home that i had to stop going. with the vertigo it is not easy to make the appts and if i missed one he billed me anyway (even with over 24 hrs notice) so i am trying to cope on my own. with the help of my friends here i seem to make it thru the worst of the nights--i seem to be going to extremes with my sleep problems--either i am up with insomnia or out in a coma like sleep--
you are in my prayers..feel free to pm me anytime you need to.it may take me time to write back--this is my boyfriend's computer and he hogs it alot during the day--and then late at night--i try to get some time in when i can..he is in las vegas until monday so i am having unlimited access this week and am enjoying it..if it was not for this support group i don't think i would be here today--so from the bottom of my burning feet i thank everyone for being there for me...
stay strong...will write more tomorrow----moonstar (linda)