Sorry to hear your in such pain, Karen. What I don't like hearing is your eye sight and those headaches on both sides of your head. You also mentioned numbness of your lips. Karen, have you seen a neurologist for this? if not, please do. I'm worried about you! You son sounds like a "Gem"! what a sweetheart! Love, Desi

I was thinking the same thing as Desi - if these are new symptoms you need to have them checked - just in case it is something new and maybe "fixable" or treatable.

Im scared please read Desi I thought maybe the infection came back my mom said it can specially under all this stress with me and my son hurt and divorce and being alone here and full body but it been coming on slowly and I have started to lose control of insides Im 39 Im not ready I have been fighting with another long health issue from a dr from surgery that went bad feeding tubs for 5 yrs I cant do them anymore they burn my vains Im not even 100 pounds if you look at the two pics here they are only 3 weeks less then a year difference I cant keep weight on I just dont know anymore Im here for my wonderful son he keeps me going but what if I cant he told me that he is watching me swink and not see and hurt and truning into a shell the other day and today. He knows Im fighting for him but Im tired and headacks and vision and half my facenumb I dont know >>>>>>>>>>Can you help Jo55 I have been missing both of you (YOU AND DESI) Thanks gentle hugs Karen

How long has it been since you had a complete work up?
MRI or CT, full blood testing - those kinds of things.

Do you have a doctor that is actively directing your care and doing follow up ?

I have a great primary dr but CT OR MRI years fully blood test a few months a think I am having a hard time thinking and puttings things in the right way even writting emails my son said they are not making the same sence as before it sounds like it to me and when I email if I read them back its not. Its hard to find good care here drs are leaving to much to live here its hard. I dont know Jo55 I fill stuck i went to UCLA in Calif teaching hosptial but that was 3 yrs ago they said they same thing my pain dr a different dr then my prim dr said I have RSd and its bad and moving fast and they wouldnt do anything ealse I dont know ......I just want help if I can get some kind my birthmom a yr ago I meet her she has fibro. and I have a half sister in a chair to but she couldnt talk about it and I have been in my chair 3 yrs. and still have my walking ahahhahhacast on after 4 yrs no bone left.............Karen

Hi Karen! I agree with Jo on this! you need to have a complete work up. I just had mine all done. Also those ER doc's don't know nothing, it's best to see a specialist. Get yourself some of that "ensure drink" to help ya put on some weight. Are you seeing any type of neurologist? If so, what does he/ she say? I am keeping you in prayer sweetie. ((big Hugs Karen)) Love, Desi

Hi kitti, I just want to let you know , we are out here and thinking about you. Hugggggggggggggggggggs

Thank you very much..................How are you? ................Gentle Hugs

Karen I am here for you to

Hi Kitti, I hope you are feeling a bit better today.

I agree with Nikon, the lidoderm patches help a lot. I have only started using them recently, and now that I do, I am mad at the Dr.s for not suggesting them sooner! As a matter of fact, they didn't think of them at all, I got some from a friend who didn't use hers, and I loved them. I asked for a rx, and the Dr. was happy to oblige as they aren't an addictive narcotic like just about everything else they give me, lol.

Kitti, as far as the weight goes... I am an aids patient, and know all about that! My suggestions are #1) Ask the Dr.s for Marinol. It's a synthetic pot pill, and will help you feel much better. You'll actually feel like eating!
#2) Get an Rx for Boost, Ensure, whichever one is available in your area. It's a little mini milk shake kind of thing, easy to drink and packed full of everything you need to survive. They're a huge help to me, I think you'd benefit from them too.

I am sending extra gentle

Thank you for taking the time to email me unfortally I have been on the patches Lidoderm from day one and they haven't helped me. Not even a pinch I am on pain (FentylePatches) for 13 yrs I dont know if thats it or what .I wish they did. I would do anything at this point. I hated saying that they didnt help at all because Im so feed up but I keep trying like everyone does. and I also hate to say this to they took my part of of intestisnt that takes they food or drink and divides all the stuff and they removed that so I have tried all the differnt drinks and anything liquid or not and its usually out of my system within 20 minutes i asked about a transplant they said because it tissue I would have to have all stomach liver, bladder transplant and they dont want to take a chance so I do really oh really understand but I am going to try again I try drinking all different ones even the ones from the dr about every year because maybe one time something will be it. I will let you know . I thank you so much for trying to help me please if you here of anything keep in touch with me and even you dont please keep in touch......

Gentle hugs and sweet dreams

wishing you the best karen