Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-29-2007, 07:01 AM #1
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Confused I can't sleep burning pain so bad again on the bottom of feet.

Hi everyone thank you for helping me with my sons injurgy and all my pain and fallling. Nothing has changed with that yet and I'm having problems with my visioon really bad and the burning on the bottom of both feet . I have the burning hot stabing pain on the bottom of both feet again that wakes me up every few hours now .Like I did before but its really bad and I just want to scream but I can't I will wake up my son and he can here me crying from the pain so I am doing everything to try not to have him hear me but sometime I can't help it .I have to sometimes just let it out so it doen't eat me up. I end up rocking back and forth like a child would holding my legs or fee. I don't know what to do. I have stared having problems with other issues that I needed help with that you all were right there for me helping .Im having more since the stiffness and other things my vision is getting very hard to see letters are blury or I can't see them and me eyes hurt and sometimes feel numbe and I am having problems hitting the right keys to type and Im getting small heachack on one side of my head then the other side of my face is starting to get numb when I had my teen when he was born right after I kept saying I felt like I had a stroke and the drs didnt do anything because 23 hours of laboer all natueral no pain meds or injections and at the end it went bad bu I hung in there and he came but 24 hours when I went home I kept telling my mom something was wromg I really thought I had a stroke a few hours later with the numbness getting worse and my face started to change my dr said after my mom called after I woke up and the side of my head was killimg me and my face had droped he said the dr said get her to the hospital again so we went back I didnt have a stroke I had bellpolizy (I dont think thats how you spellit) but its an infection in the nevers and it acts like you had a stoke My left side of my face feels like that again. Does that happen with full body RSD? My lips are numb and my son said that they are swollen and to type I have to close eye to see better the other side of my face and its the same side my head hurts. It was hard before thats why I wrote everyone to tell you what was going on Im still wanted you all to know that i was still here but I wasnt going to be on for a little bit because of my hands and my son getting hurt and having to go see an surgeon for him this week but Im getting even more worried about these things with me is this more RSD ? I really cant do this it is moving so fast ,I was hoping things were going to be going okay but they are not they are moving faster. I have done somethings from people have given me help with like asking my dr for home health and some other things that friends here have reminded me to do but I am getting very worried about being alone here with my son and if it is RSD whats next Im holding on tight but my son said to me a couple of days ago he has noticed that all of these things are getting bad enough that he is watching me and he sees them and he is keeping his friends to be careful here because Im getting worse and he is really exsplaining to them what RSD does and it happening to me and his friends come in all sad and its braking my heart for my son to feel like this and he is so worried he is telling his friends how bad I am getting...................................I will check in but I might not email back this week unless Im can..............Thank you for all of your helping me ,ideas and info and all the careing that everyone has me I hope this email makes sence Im having such a hard time with that and that is what got my sons attention that there was somrthing wrong a few weeks ago, so thank you again.................to all


Best to all and GENTLE HUGS TO.......I think of you all............everyday,,,,,,,,,,

Karen
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Old 05-29-2007, 07:15 AM #2
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I am really sorry that you had a bad night. I had a bad night as well! I hope your day is better than mine has started out to be! Have a wonderful day...... Here are lots of gentle hugs sent your way!!
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Old 05-29-2007, 11:02 AM #3
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Karen
I use the lidocaine patches on the bottom of my feet for the burn....it doesn't take it all away but gets it a little cooler. The hard part is deciding whether or not to use them in the day or night. They are 12 hours on and 12 hours off, so depending on the day I have to choose when to wear them. They do add a little cushion to my shoe during the day so that's a plus
Dana
Hope your day is turning out better than your morning One thing I've learned is I can restart my day at any time....so sometimes I have a lot of mornings in one day
Jeanne
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Old 05-29-2007, 06:10 PM #4
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I am really sorry that you had a bad night. I had a bad night as well! I hope your day is better than mine has started out to be! Have a wonderful day...... Here are lots of gentle hugs sent your way!!
Dana, Thank you so much. I was reading last night one of your messages and if I knew you were having the same problems I am and was having with dealing with this SH** I would of been right there .I understood everything you are going through the alone way I have make it with full body and in a chair and all this pain is finding people that understand and care I mean really care and are allways here for you. I am so close sometimes getting divoced in the middle having a teenager that I have full everything and Im starting be have seeing problems and writing and this morning I wake up after a couple of hours and my half of face is numb and its hard to talk or say all the words the right way and my son was hurt bad at school 2 weeks ago and today he woke up and his rib is syicking out so their is more damage then they thought but I try to breath but thats even getting hard and I was a hospic nurse I took classes at 17 and got my nursing lience thats all I wanted except a child and a husband I have a 15 yrs old but lost everything ealse but I keep waking up I dont know why but Im still a fighter and you are to. Email me anytime.......................Take Care Gentle soft hugs Karen
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Old 05-29-2007, 06:59 PM #5
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Sorry to hear your in such pain, Karen. What I don't like hearing is your eye sight and those headaches on both sides of your head. You also mentioned numbness of your lips. Karen, have you seen a neurologist for this? if not, please do. I'm worried about you! You son sounds like a "Gem"! what a sweetheart! Love, Desi
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Old 05-29-2007, 10:58 PM #6
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I was thinking the same thing as Desi - if these are new symptoms you need to have them checked - just in case it is something new and maybe "fixable" or treatable.
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Old 05-29-2007, 11:34 PM #7
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Help Desi

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Sorry to hear your in such pain, Karen. What I don't like hearing is your eye sight and those headaches on both sides of your head. You also mentioned numbness of your lips. Karen, have you seen a neurologist for this? if not, please do. I'm worried about you! You son sounds like a "Gem"! what a sweetheart! Love, Desi
No I havent' for that I was in the ER tonoight with my son for him and I had to call my mom because Of my vision .Im scared. I used to get migernes when I was married in the 90s the first time its been a long time and I had got bellposils (I dont think I spelled that right) It an infection in your neverous system I had it after I had my son 23 hours of labor and pushing so hard I thought I had a stroke and with in 24 hours going home I couldnt smile and talk same systems But the vision was fine it staied that way for awhile my mom want me to see the er dr but they wouldnt do anything here and my son is going to see our reguarl dr Wed. and she wants me to tell her.I was told that some people have vision problems with RSD when it gets like this and headacks and other have face mumbes I dont know I was scared enought to call my my from the er for my son she came and drove use home I cant see at all right noe the lights are making to worse I see colors but not other things . Im a nurse but this is not good do you have any idea? HELP ME IF YOU DO IM SCARED AND I DONT WANT TO LOSE EVERYTHING MORE THAN I HAVE>>>>>>>>>>>> THANKS Gentle Hugs Karen
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Old 05-29-2007, 11:43 PM #8
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Help Jo55

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I was thinking the same thing as Desi - if these are new symptoms you need to have them checked - just in case it is something new and maybe "fixable" or treatable.
Im scared please read Desi I thought maybe the infection came back my mom said it can specially under all this stress with me and my son hurt and divorce and being alone here and full body but it been coming on slowly and I have started to lose control of insides Im 39 Im not ready I have been fighting with another long health issue from a dr from surgery that went bad feeding tubs for 5 yrs I cant do them anymore they burn my vains Im not even 100 pounds if you look at the two pics here they are only 3 weeks less then a year difference I cant keep weight on I just dont know anymore Im here for my wonderful son he keeps me going but what if I cant he told me that he is watching me swink and not see and hurt and truning into a shell the other day and today. He knows Im fighting for him but Im tired and headacks and vision and half my facenumb I dont know >>>>>>>>>>Can you help Jo55 I have been missing both of you (YOU AND DESI) Thanks gentle hugs Karen
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Old 05-29-2007, 11:53 PM #9
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How long has it been since you had a complete work up?
MRI or CT, full blood testing - those kinds of things.

Do you have a doctor that is actively directing your care and doing follow up ?
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Old 05-30-2007, 12:07 AM #10
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Hi kitti, I just want to let you know , we are out here and thinking about you. Hugggggggggggggggggggs
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