NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - new here (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/206988-new-here.html)

Just to clarify a couple of things in case there is any confusion. Osteoporosis and osteoarthritis are very different medical conditions. Osteoporosis can't turn into osteoarthritis. Osteopenia if untreated can turn into osteoporosis.

Dystrophy doesn't affect bones. It affects muscles. Muscle dystrophy is loss of muscle other than due to disuse. It can be caused by things like lack of blood flow or nutrients which cause parts of the muscle to die but it is not caused by lack of use and is not reversible where there has been death of a muscle. Its not the same as muscular dystrophy which is collective name for a group of quite different inherited genetic disorders.

Muscle atrophy is caused by lack of use or lack of movement. The muscle bulk is reduced because the fibres are not asked to work. Muscle atrophies at a rate of about 4% per week - even more if there is a change from total use to total disuse. Muscle atrophy is usually reversible once a muscle is used again (by using the limb or in physiotherapy). Even in cases where all of the motor signalling from the central nervous system has been lost such as in spinal cord injury which has resulted in paralysis, atrophied muscle can be rebuilt using artificial electrical stimulation.

Quote:

Originally Posted by Firedancer79 (Post 1086461)

Since RSD can affect nerve, skin, joint, bones and tissue, some people see a rheumatologist. What kind of symptoms are you having?

OMG!? I have to chime in with a question for fellow sufferers. I have been having major problems with my eyes. Now, this may be gross, but I have a problem with getting corneal ulcers. Very painful. It feels like I have glass in my eye when I get one. I almost lost vision in my left eye, I was very lucky we got it under control or it would have been too late. I'm only 35, and I don't wear contacts. So, I wonder is this related???

Here is a site to review regarding corneal ulcers.

http://www.nlm.nih.gov/medlineplus/e...cle/001032.htm

Another site concerning Fuchs' Dystrophy:

http://www.mayoclinic.org/diseases-c...n/con-20023893

osteoporosis vs ostearthritis

A good site for someone with CMT.

http://ghr.nlm.nih.gov/condition/cha...-tooth-disease

Damage to peripheral nerves can result in loss of sensation and wasting (atrophy) of muscles in the legs, hands and feet. You cannot get the muscles back. They are atrophied (dead) from the syndrome. And much more.

Charcot Marie Tooth Syndrome is the most common "inherited" neuromuscular disease. It affects the peripheral nervous system (PNS). Everything outside the brain and the spinal cord. There are over 70 types of it identified so far and there is no end in site.

People with Muscular Dystrophy are born with diseased muscles. Multiple Sclerosis is autoimmune (body attacking itself). CMT is inherited. If you get the gene you can be young, old or in-between before symptoms become evident. Or they may never be that evident. Symptoms vary greatly even within the same family.

Quote:

Originally Posted by Neurochic (Post 1086948)

Just to clarify a couple of things in case there is any confusion. Osteoporosis and osteoarthritis are very different medical conditions. Osteoporosis can't turn into osteoarthritis. Osteopenia if untreated can turn into osteoporosis.

Dystrophy doesn't affect bones. It affects muscles. Muscle dystrophy is loss of muscle other than due to disuse. It can be caused by things like lack of blood flow or nutrients which cause parts of the muscle to die but it is not caused by lack of use and is not reversible where there has been death of a muscle. Its not the same as muscular dystrophy which is collective name for a group of quite different inherited genetic disorders.

Muscle atrophy is caused by lack of use or lack of movement. The muscle bulk is reduced because the fibres are not asked to work. Muscle atrophies at a rate of about 4% per week - even more if there is a change from total use to total disuse. Muscle atrophy is usually reversible once a muscle is used again (by using the limb or in physiotherapy). Even in cases where all of the motor signalling from the central nervous system has been lost such as in spinal cord injury which has resulted in para

lysis, atrophied muscle can be rebuilt using artificial electrical stimulation.

Neurochic - thanks for keeping us accurate.

Thank you so much guys, this subject applies to me so well, I have ostheoporosis on my right foot and are always a chance to get into osteoarthritis ,so, all your links are so unique and important for patients like me dealing with rsd,osthoepososis and try to avoid any other bone related conditions .:confused: is so scary to think because of my bones keep rubbing agains each other every time I walk I really don't want to have anything else and suffer more,I had no chance for a fusion do to rsd and dr are not willing to risk it at all,but that means my bones will always gave me pain each time I walk,so I'm always with a non positive diagnoses ,is either get rsd spreading by having a fusion or keep with that pain and scs trying to relief a little pain,but scs never will take away my bone pain,sucks for real
Thanks for the links, I added to my link journal and sure will be so handily for many others.
Gentle hugs and hope a nice week full of relief and less pain.with love Jesika .:grouphug: