hi I'm new here, relatively new with rsd. interested in what kinds of doctors/specialists and treatments people have had good luck with. thanks.

Welcome Winter7.

Someone will be along to help.

Welcome Winter7

I am sorry you have RSD but glad you found the forum.

You will hopefully get a lot of responses.

People see different doctors based on their symptoms and other issues they may be dealing with.

Many people see:

-pain management specialists
-neurologists

Since RSD can affect nerve, skin, joint, bones and tissue, some people see a rheumatologist. What kind of symptoms are you having?

Treatments are widespread and there is a lot of literature out there about the common treatments. Some are effective for some people, some less effective, some people manage their pain fairly well, some struggle. It is all over the map really.

Check out the treatments tab of this site http://www.rsdhope.org/treatments.html

Here are a just few ...

- Pain medications
- nerve blocks
- physical therapy

I am happy to tell you more but I am sure others have a lot of good info to share.

Best of luck and welcome to the forum...

thank you so so much for all of this.
I have some specialists. some dr's have been less than helpful.
I have a lot of pain, flare ups get really bad. neuropathy, numbness, temperature problems. I'm concerned about long term damage if I am not taking care of things properly (like bone/tissue). not sure if there are ways to prevent that damage.

Since RSD can affect nerve, skin, joint, bones and tissue, some people see a rheumatologist. What kind of symptoms are you having?



OMG!? I have to chime in with a question for fellow sufferers. I have been having major problems with my eyes. Now, this may be gross, but I have a problem with getting corneal ulcers. Very painful. It feels like I have glass in my eye when I get one. I almost lost vision in my left eye, I was very lucky we got it under control or it would have been too late. I'm only 35, and I don't wear contacts. So, I wonder is this related???

Your questions are so valid and also scare at the time,when we deal with rsd, all seems to be related.
So far I learned the symphatetic nerve controls sweat glands,nerves,body temperature, weight , nails and hair growing , stomach, so if you think about it all is deleted to the whole system ,if one organ don't work well there is a chain of reactions, your memory ,your sight get affected as well, a good optometrist will consider to take a picture to compare with the future pics of how your eyes inside get affected,my did and I glad he listened and care about to keep a record for the future after all ,rsd is neurologic and the brain is mostly responsible for all the changes .
I did paid extra few dollars for the picture but i didn't mind because the dr did care and suggested is good idea to keep a record of everything by keeping pictures of any change we notice,is the best advice I had receive in a longtime .
Many organs for sure get affected with medications as well by rsd controlling certain nerves,some dr decided to do some symphatetic nerve blocks but I are invasive and many times don't last as long as we expect.
Also many people due to rsd are not able to move an specific limb as before and many develop osteosporosis which later can develop into osteoarthritis,your bones can get dystrophy due to the lack of movement what's why physical therapy is so important ,keep in movement as much as you tolerated without hurting you .
I hope still helps a little and also check in rsdsa.org for some updates, I wish all a weekend full of days of relief and less pain,with love Jesika .

thanks Jesika - this is so useful. I'll talk to the optometrist about the rsd. thanks for the info about osteoporosis, i didnt know this was how they were connected. I thought something else happened with the bones from rsd. didn't know it was risk of dystrophy from lack of movement. motivating information.
I wish you less pain and more relief also!

Sorry about the misspellings ,my iPad has it own power over me and changed my words,like I said before is kind like rsd,takes control of everything and when I noticed ,I can't fixed the errors any more,but hope you understood wht I was trying to said,yes English grammar us obviously not my mayor,but my iPad made it worse!!
Gentle and soft hugs,remember ,just reach us with your hands nd we re here for anyone who needs us.with love Jesika

pain, swelling, color changes, temperature changes, loss of sensation.

sorry about your eyes! that sounds very painful and bothersome.what do you do when it gets like that? I hope you find something to alleviate at least somewhat and that you feel better.

Here is a site to review regarding corneal ulcers.

http://www.nlm.nih.gov/medlineplus/e...cle/001032.htm

Another site concerning Fuchs' Dystrophy:

http://www.mayoclinic.org/diseases-c...n/con-20023893