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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-18-2014, 07:22 PM
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Junior Member
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Hi all
Happy Friday, hope everyone is hanging in there. SOFT HUGS. Just curious. 1. How many people on this site/forum have RSD and Celiac Disease? 2. If you have both, which came first, chicken or the egg..lol? 3. When in your life span, was your Celiac diagnosed? I feel like there is definitely a connection between the two. I have both. Thanks |
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07-18-2014, 10:27 PM
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I have both. Based on my symptoms, I've had celiac since I started solid foods. It only took a meager 34 years to get a diagnosis, which came 1 1/2 years ago now. My CRPS started a bit over 5 years ago and my diagnosis was in March. I have done a bit of reading in which some researchers seem to think that there is an autoimmune/CRPS link. It wouldn't surprise me in the least since celiac is linked to so many things already.
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"...it needs to be about 20% cooler." Celiac DX Dec 2012; over 30 years symptoms to DX CRPS DX March 2014; 5 years, 1 month from first symptom to DX |
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| "Thanks for this!" says: | Burnbabyburn (07-19-2014), eevo61 (07-20-2014) |
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07-19-2014, 11:37 AM
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Thanks Adalaide
Appreciate your response. I think there is a connection for sure. And I do think RSD has an autoimmune component. I too was diagnosed very late (which I think could be the connection) possibly. It took them about 38 years to diagnose me. I have had RSD for about 25 years. Interesting. Have a good day  Quote:
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| "Thanks for this!" says: | eevo61 (07-20-2014) |
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07-19-2014, 07:08 PM
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I have had RSD for about 5 years and over the years its gotten worse full body, ears bad, passing out, seizures, grand mals, confusion, can't remember pass events hard time communicating. Severe depression, anxiety. And ptss. I see great doc in Atlanta, ga. And is doing all he can, is just the docs in Fl. Were not educated enough onRSD. Any words of wisdom |
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| "Thanks for this!" says: | eevo61 (07-20-2014) |
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07-20-2014, 06:31 AM
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I unfortunately can provide any information additional of what you already might had but I recently read that a diet free of gluten helps a lots so you can try it and see if you can get some relief ,after all meats are hard to digest by our system and also add pain in your joints ,I'm sure affect is some way so try gluten free and avoid red meat just in case , good luck and wish you well.from Jesika also gentle hugs as well.
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07-20-2014, 12:25 PM
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Please, with those symptoms don't try a gluten free diet without seeing your doctor and having a blood test for celiac disease. Some of those symptoms can be associated, but then they could mean a lot of things. It is a simple blood test, and you can't be tested if you're gluten free already.
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"...it needs to be about 20% cooler." Celiac DX Dec 2012; over 30 years symptoms to DX CRPS DX March 2014; 5 years, 1 month from first symptom to DX |
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| "Thanks for this!" says: | Burnbabyburn (07-25-2014), eevo61 (07-20-2014) |
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08-11-2014, 05:59 AM
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Quote:
Renee |
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| "Thanks for this!" says: | eevo61 (08-12-2014) |
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02-10-2015, 10:10 PM
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My daughter was diagnosed with CRPS/RSD 3 years ago. The flare ups come and go. I have never tested her for celiac but I know my daughter has autoimmune deficiencies. I am starting her on a gluten free diet to see if the reduction in gluten reduces the flare up. I am using Derma Mag lotion to treat her pain and it has helped.
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| "Thanks for this!" says: | eevo61 (03-28-2015) |
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03-25-2015, 10:40 PM
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That's interesting - my daughter was diagnosed with RSD about 3 years ago, and we're now looking into gluten-types of problems because of her constant diarrhea. She had C-diff last September, but that resolved (and the diarrhea is of a different type). She's in the middle of a bunch of tests now.
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| "Thanks for this!" says: | eevo61 (03-28-2015) |
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03-28-2015, 09:42 PM
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Hope we all find a way to deal and control our flares ,rsd and other autoimmune diseases are not good at all.
Blessings and best wishes to all, give me any tips if you have any ideas of how control environmental allergies ,please I know someone will ,thanks ,Jesika .
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How many people have RSD & Celiac Disease
the Rsd doesnt let up
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