Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-01-2014, 11:51 PM #1
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eevo61 eevo61 is offline
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eevo61 eevo61 is offline
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Join Date: Aug 2013
Location: California
Posts: 389
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Yes I had a law office managing my case ,my old ortho dr was really nice and also recommended me so many other options but unfortunately my pain management dr was not believing rsd travels and give me suck of hard time, even though my ortho keep arguing with him about the treatments and also reports to get corrected ,I trusted my ortho so much and I can still call them for advise ,obviously just between them and me,nothing on record but they really recommending rsd specialist that came afte an AME declare me partial disable without rsd on in, but he told me to insist with the pm dr to get rsd specialist and finally the insurance accepted to pay for rsd visits and also fuehrer care ,so far I had been told that but I can't trust anyone until I see a document stating that .
Rsd is not permanent and stationary, really ,not getting better is ok according with some dr because after all ,you don't get worse,what is that? No getting worse means you are stationary stage when my whole body feels flare everyday and stress makes things worse, I really think money is the only thing everyone care about , I don't , I want my peace of mind, I need to assure I will be cover for the future and yes I will continue this awful episode of my life having hope and wishing only to get the what I can , I can't work because no one wants me with restrictions ,is a hustle but I will make it through,I hope for real.
Thanks for all your encouraging words, I got panic with that rsdsa research about autoimmune systems attacking, I need to be ok and things like that makes me so scare .
Thank you all so much ,Lottie I truly appreciate your kind and thoughtful words as well, I feel many times even though I had help I'm actually battling alone.
Gentle hugs and best wished to all, enjoy a weekend free of pain if not free of pain,at least less pain,take cafe .from Jesika .
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