hi sue,
i do believe that my mother is very jealous of my relationship with my children and my grandchildren. she was also always very jealous of my relationship with my father and my grandparents who i loved dearly. she always tried to get in the middle of any conversation of even get in the middle of a hug ... and i also think she must wonder every day how much my family knows about HER, which is plenty.
i think it is wonderful how you teach your children about all of their heritage. i am a mix of irish, engish, and german, and a drop a scotch and french! but i do not think of myself as anything in particular and i have had friends of every kind. it is great to know the different traditions.
i think you and i had a good long look at many different types of pain at a very young age and we realized way back then that it is what is in the heart that counts.
i think the nightmares were a combination of the discomfort, the inability to move, and the mean mothers ....but we are the mothers now and we are not mean, not at all. i am so glad we have met.
much love, joan

joan.
i need your opinion on something. there is a local hospital here that if something happens to me i will have to go there if it has to be in hurry. they know nothing about rsd. my therapist thinks that i should go there and educate the drs. and staff about our illness. she belives it will not only help people in this area about rsd but also help me handle this monster better. she wants me to be a spokesperson for this area. What do you think? I don't have a printer so I was going to ask my sister (she also has rsd, but a very mild case) to print out some information about it. I get nervous in front of alot of people and i want to get it right. As it is now if i go there and i say i have rsd, they look at me like i am an alien. when my foot went i had to go to springfield and it was a very painful ride. this hospital is closer. 2min. Do you think this is a good idea?

Love Sue K.

Yes, Yes And Yes. Boy That Is A Great Opportunity, And May Help, Not Just You, But Others And Even Help To Diagnose People Who Come In To The Er And Do Not Even Know They Have Rsd.
There Are Some Rsd Sites That Give Out Brochures To Leave In Doctor's Office Waiting Rooms And I Have Done That. I Think It Is 'rsd Hope' But I Would Need To Check The Website Or See If I Have Any Brochures Left.
So Let Me Know How You Make Out. And I Will Check On That For You. Joan

so many threads lately that we go to the next page so quickly that i just wanted to make sure you saw this post.
did you see how many people read our thread! ha! and i think we are boring!!!
joan

sue and all,
saw my newest grandsons on the sonogram yesterday, yes, two more boys!!! now i will have 8 grandchildren all boys. imagine? they were perfect. we saw fingers and toes and and hearts beating away and everything was fine. she is 17 weeks today. joan

joan,
iam so happy for you. isn't it so great to see the babies like that. when i went with my daughter for hers i just was so excited i cried.
i had such a bad day yesterday. all that rain killed me. i hope today will be better. my husband made me so mad. he is so good sometimes but he thinks i should just deal with it. i had a physical at the pain clinic on the 9th and they poked and kept brushing each leg to see what the difference was when they touched me. ive been in so much pain ever since. i think they really got the rsd going. has that ever happened to you.
well on to happier things. give my best to your daughter. as a person who carried twins through the summer i know sometimes it can be hard. hope your well.
love your rsd sister
sue

hi sue,
hope you are doing better after that physical. i think i might have 'accidently' kicked someone! that sounded horrible. i could feel it as i read your post.
my husband and i are on the outs right now too. sometimes he can be totally thoughtless and mean with his comments. he hates doing 'my jobs'. he forgets i did them for the first 30 years with two children on tow .... so i don't have too much sympathy for him right now since he can go play golf and do anything else he wants ... oh well, he will get over it, but sometimes i do not feel i will ever get over the lack of empathy and how awful he makes me feel.
have a good weekend, lovingly, your sister at the hip! joan

Joan,
My husband can be the same way sometimes. Last nite he said I should be able to wait for my pain meds. My pharmacy is closed on the weekends so I would have nothing till then. Sometimes he can be so nice and caring, but other times he is such a jerk. Try to ignore the comments. I know its hard but I am here for you whenever you need me. We are so much alike. No one can understand what we have been through all of our lives. Hope your feeling better my friend.

Love Sue
I forgot to tell you. The new meds are working I think. Iam not feeling as much pain where my siatic nerve is damaged. I just hope I don't gain weight taking it. I finally got down to 135 lbs. 10 more to go.

HI Sue,
i am glad to hear the meds are working. what did they put you on? anything that works, right? i am trying to get the pounds off too. with the twins coming, i need to lose some so i can carry them easier. it is tough to give up my friend ' mr. food'. but i am doing well with it. i hope to lose 20 more by the time the little angels arrive. if you lose 10 more you will be tiny!!! my goodness, how tall are you?? i'm 5'6".
the husband is quiet today but my nerves are still frazzled. it is tough when your 'home' is a place if discontent. now i know you are living with your sister so i should be glad i at least still have my house and just put up with the husband and the grandson but sometimes .... well you know. if i had not gotte a lawyer and fought for my long term disability, i would have lost my house too, the ssd would not have been enough.
well i hope you have a good weekend. i have to get up early tomorrow and take my cat to the vet for a follow up visit. she had an abcess in her eye and it was bad, but it looks much better. i have been putting antibiotic in it for 9 days now. i think it will take another week of them but that is fine with me. they told me she may lose the eye ... i felt so bad for her but she is on the mend.
take care my sister, joined at the hip!!! joan

Hi Joan,
Sorry i havn't been on for a couple of days. Things have been kind of stressful around here. Every time my sister gets a "new man" she becomes a different person. He becomes the king and she acts like shes 16 again. But good news. My nephews tenant just bought a house and my husband and I are going to take the apartment Its one bedroom, aliving room and kitchen. Hes only going to chare us 400 a month. at least we will have some privacy and I won't have to pick up after everyone aroune here. She thinks iam her maid. I don't mind doing the work but she always trows it in my face that I don't work and I have nothing better to do. She works 5hrs, 4 days a week at Dunkin Donuts. When she gets home she sits on the couch until her boyfried gets home and then she jumps up and pretends that shes cleaned house all day. Sorry for complaining but she drives me crazy!
The doc put me on Lamictal for nerve pain. Its working a little bit, but you have to raise the dose slowly. I took an awful fall yestersday in the bathroom.
Iam ok but really sore today.
Love Sue