Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-10-2014, 01:51 AM #1
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Disk VIDEO: Stanford Hospital's Dr. Ian Carroll on Nerve Pain

Published on Oct 28, 2013


Neuropathic (Nerve) Pain VIDEO -- from Toe to Head. Neuropathic pain involves damage to the nerve. The condition causes the nerves to fire incessantly, even if the initial source of the pain has been remedied. The brain responds by creating an ongoing message of pain.
Speaker: Ian Carroll, MD, Assistant Professor, Anesthesia, Stanford University Medical Center

https://www.youtube.com/watch?v=v8CP-rfqp0s
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Old 08-10-2014, 10:39 AM #2
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I haven't finished watching this yet (I have to watch it in parts because I have things to do inbetween), but I wanted to comment that it's really good and useful. Well worth your time to watch. Thanks for posting, Vrae.
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Old 08-24-2014, 06:13 PM #3
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Quote:
Originally Posted by Vrae View Post
Published on Oct 28, 2013


Neuropathic (Nerve) Pain VIDEO -- from Toe to Head. Neuropathic pain involves damage to the nerve. The condition causes the nerves to fire incessantly, even if the initial source of the pain has been remedied. The brain responds by creating an ongoing message of pain.
Speaker: Ian Carroll, MD, Assistant Professor, Anesthesia, Stanford University Medical Center

https://www.youtube.com/watch?v=v8CP-rfqp0s
The portion about the Loxitane and how pharmaceutical drugs are developed and marketed and covered by insurance was enlightning. Thanks for posting this.
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Old 08-24-2014, 10:31 PM #4
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Thanks for this link Vrae. I will watch it tonight. Take care and be well my friends.
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Old 04-26-2022, 03:01 AM #5
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My adopted son has various diagnoses = double translocations of chromosomes 7/8 and 10/11
moderate intellectual disability, epilepsy, ocd, adhd, .?schitophenia / bi-polar, deformity of the feet, and can become very aggressive at times.
Since our government closed large residentials and moved our special people out into group homes I have been arguing with the untrained staff who feel they know better than the medical fraternity and want to remove the diagnosis of epilepsy from my sons diagnosis because it is many years since he was observed to have a major seizure — now, David’s previous Psychiatrist said ( and I agree ) that this is because he is correctly medicated and when he has periods of aggression it is because of some type of ceberal irritation ie: epileptic activity. David is 42yrs old, very tall, loving, outgoing but unable to do many activities ( I feel) because his concentration capacity is short - he can see how you do things and cannot understand why when he does the same thing it gets him into trouble.
Dr Ralul Jandiae gives me hope with his electric signals and latest treatment, that there may be some help for David , he is like a filing cabinet and we have lost the key to an important drawer, I would value your advice. Many thanks for the YouTube videos.
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Old 04-28-2022, 09:25 AM #6
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Welcome Grace Ley.
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Old 05-04-2022, 04:13 AM #7
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Quote:
Originally Posted by Grace Ley View Post
My adopted son has various diagnoses = double translocations of chromosomes 7/8 and 10/11
moderate intellectual disability, epilepsy, ocd, adhd, .?schitophenia / bi-polar, deformity of the feet, and can become very aggressive at times.
Since our government closed large residentials and moved our special people out into group homes I have been arguing with the untrained staff who feel they know better than the medical fraternity and want to remove the diagnosis of epilepsy from my sons diagnosis because it is many years since he was observed to have a major seizure — now, David’s previous Psychiatrist said ( and I agree ) that this is because he is correctly medicated and when he has periods of aggression it is because of some type of ceberal irritation ie: epileptic activity. David is 42yrs old, very tall, loving, outgoing but unable to do many activities ( I feel) because his concentration capacity is short - he can see how you do things and cannot understand why when he does the same thing it gets him into trouble.
Dr Ralul Jandiae gives me hope with his electric signals and latest treatment, that there may be some help for David , he is like a filing cabinet and we have lost the key to an important drawer, I would value your advice. Many thanks for the YouTube videos.

Welcome. A cousin of my mom's has a son with multiple disabilities as well. He has the capacity, brain function wise, of a toddler and hardly grew past that, but he is a grown-up man as well and that is the hard part. They do not know their own strength.
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Old 05-25-2022, 07:22 PM #8
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Quote:
Originally Posted by Vrae View Post
Published on Oct 28, 2013


Neuropathic (Nerve) Pain VIDEO -- from Toe to Head. Neuropathic pain involves damage to the nerve. The condition causes the nerves to fire incessantly, even if the initial source of the pain has been remedied. The brain responds by creating an ongoing message of pain.
Speaker: Ian Carroll, MD, Assistant Professor, Anesthesia, Stanford University Medical Center

Stanford Hospital's Dr. Ian Carroll on Nerve Pain - YouTube
Great video! I learned a few things. Thanks.

It really makes me realize how lucky I was to get the care I have. My pain, anxiety, and fear have been easing a bit recently and I'm trying to wean myself off as much and many of the meds as possible. I no longer have to wrap my hand and I might even see little callouses starting to form on it again. It's been 24 years since my injury.

I had always believed that if I had been given a proper chance to heal that all this wouldn't have happened but the video suggests it might have been all the same.

Gabapentin certainly deserves a lot of credit for my ability to cope with this all these years. But it's still the one I want to cut the most because it affects my thought processes by preventing my seeing the connections between disparate things. It might also be interfering with my math abilities but it could be the RSD that did (is doing) this.
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Old 05-25-2022, 07:31 PM #9
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I had a remarkably good reaction to Lyrica but when the dosage was upped I got confused and the doc said it was dangerous to continue it. Lyrica was almost as effective as a stellate ganglion nerve block except if I did much of anything I had more pain the next day that was not controlled by the medication.
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Old 07-03-2024, 03:37 PM #10
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Hi,
I saw the whole video. It was 10 years ago. Have there been any update re: treatment of RSD?
Please advise and thanks.
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