NeuroTalk Support Groups - Questions about the five day inpatient ketamine

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Questions about the five day inpatient ketamine (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/208255-questions-five-day-inpatient-ketamine.html)

Quote:

Originally Posted by billycalexander (Post 1105348)

Loves terriers,

Where are you getting your infusions?

Billy Alexander

I get them from Dr. Grzegorz Skiba at Omaha Pain Physicians in Omaha. He is the only doctor that I have found in Nebraska that does them. He and his staff are amazing. I would highly recommend him. He is very innovative and knowledgeable about CRPS and various other medical conditions. He even does stem cell treatments. He is a great listener and will never try to talk you into a procedure you are uncomfortable with doing. Here is a link to his website:
http://www.omahapainphysicians.com/index.html

Hope this helps!

Wow, that seems like alot of ketamine treatments! I'm looking into getting a 7-day in-patient treatment in Winston-Salem, NC hopefully soon because I'm in so much pain, i would rather die than live like this, but I was hoping my pain would be much better, ideally go into remission. I've never heard of anyone having to have the in-patient that frequently with out-patient treatments on top of it! Yikes!

So this leaves me with alot of questions, but for now, I'll focus on two main ones. 1) Does your insurance cover all of these treatments because I know they aren't cheap and I'm not even sure yet if my insurance is going to cover this one yet. 2) If your daughter needs on-going treatments and repeated treatments so frequently, is it really working like it should and will they eventually get to a point where they are no longer needed? I know there's no way to really know that. But I'm wondering if the doctors have given you any prognosis/hope? My heart goes out to you and your daughter.

Quote:

Originally Posted by CatPutsche (Post 1096381)

I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.

I hope this helps you!!! :grouphug

Catherine

Hi,
I just read your post regarding the multiple in-patient and out-patient treatments your daughter has had. I have never heard of anyone who has had to have so many that frequently. Is it that her CRPS is that bad and the treatments just don't last long? I'm considering a 7-day in-patient treatment in Winston Salem, NC. I was hoping the one would do the trick. However, my pain is extremely bad. I have a question for you regarding insurance, especially since your daughter has so many treatments. What kind of insurance do you have and does it cover repeated treatments? I hope she's doing well. My prayers are with you, your daughter, and your family.
Thanks,
Denise

Quote:

Originally Posted by CatPutsche (Post 1096381)

Hi!

I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.

I hope this helps you!!! :grouphug

Catherine

New Member REALLY Seeking This Info!

Just registered here on this forum yesterday after finding threads about the Ketamine Infusion treatment!

Desperately looking to converse with those who have done this and need advice about it asap - I am about to undergo this soon!

Seems new members have restricted usage here so i can't PM anyone yet. I will keep checking back here to find someone to help me out. Meanwhile my New Member Intro Post should be up soon, awaiting Mod approval. Its called :

"My New Member Intro - Marine First Sergeant"

Hope to hear from experienced members soon as this things scares me, but the pain is OFF THE HOOK! All help is greatly appreciated!

Gunny