Hi everyone,
I have read postings on this web site many times, but I guess I never joined! So, I finally joined. I have reflex sympathetic dystrophy in my right leg and foot, but unfortunately I have a bunch of other pain problems as well (neck and arm, low back.)

I was just prescribed Namenda, and I was wondering if anyone has taken this medication and foun it helpful. Or, did you have any side effects?

Anyway, hope everyone is having a good day and that the pain is not too bad today!

-mleland

welcome,
Glad to have you join us. Sorry it has to be for this reason tho. Everyone here is great. there is so much information to be had from everyone here. I've not take the meds you asked about, but I'm willing to bet someone here has.
again. welcome
Mary

Hi Mleland Welcome to the forums. Sorry you have to be here, though. My rsd/crps started in my right ankle, then spread to encompass both legs. Working on arms now too.

Hope we can be of some help to you, if nothing more than emotionally.

welcome, i have not used this med. so sorry i cannot help with that. have you reseached it? that is what i do. i find with rsd we have to do our research because no one seems to know anything. sad but true. joan

Dear Mleland,
I just saw your question about using Namemda and didn't see any response so I thought I would give you my two cents:.> I used it about two years ago because my memory was so bad from the RSD and other illnesses related to it. I could not remember anything and was really having a difficult time. A neurologist started me out on 5 mg and then I think it went to 10 mg, and then 15 mg and he thought it would have no effect on me and I felt a total improvement within a half hour of taking it. I felt human again and felt like my mind was working again. I know the doctors use it to treat Alzheimer's patients and I think the drug is wonderful. I got off of it eventually because I was taking so many other drugs that I felt my body was shutting down from too many meds. I didn't have any side effects on it which was great. I hope it works for you too. Let us know how you make out on it.
Thanks,
kathy d.

If you got to the right and click on "search this forum" I think u will find info on Namenda
Hope that helps- I am thinking about it too

debbie

It was just prescribed to me a couple days ago. I just took the first pill a few minutes ago.

I took a copy of an article that fmichael posted here to my doctor a couple days ago.... the article where a handful of people with CRPS were treated with it and saw real improvement. I also told him I knew of a couple people on the RSD board I go to that are on it or were on it and had improvement. The doc checked around with some other docs and called me back saying that he felt it was worth a try.

The article was posted under Sandel's thread "new med sounds promising"...

I downloaded the full text and took it to my Dr. He is putting me on the dose it refers to in the article. Start at 5 for two days, then to ten for two days... up by 5 per day till I get to 10 three times a day (30 a day)

This was a new doc for me. Head of physiatry at Ohio State... he said he checked with several collegues (sp?) who worked with this medication for Alzheimer's and cognitive problems. He also checked with head neurologist, who said it is just starting to be used as a med for nerve pain, but looks really promising, and they want me to keep in touch with them on how it goes. The new doc said he gets handed lots of stuff off the interent, but this seemed very logical to him. Since I can't take neurontin or lyrica, or any of the antidepressants I have tried, he felt this was a good option to try for me.

Will keep you all posted on how it goes. Maybe it will help with the Topamax moments.

Jules