Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-06-2014, 08:08 PM #1
Muse446 Muse446 is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
Muse446 Muse446 is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
Question New to the group but RDS/CRPS for 3 yrs.Triggers?Would love referral to RSD Expert

Hi all,
I won't go into too much of the past history. Surgery 3 years ago for spondylethesis L5 Grade 4. RSD symptoms started the day after surgery and have progressed to my whole body.
I've attempted to find triggers (dairy, weather, stress!) What triggers have anyone noticed?

Second, I live in Portland, and can not find a doctor here who is up to date in at least the last decade (Lol) of RSD CRPS knowledge of treatment and pathophysiology.
Any suggestions?
Muse446 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (09-07-2014), RSD ME (09-06-2014)

advertisement
Old 09-06-2014, 08:34 PM #2
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Quote:
Originally Posted by Muse446 View Post
Hi all,
I won't go into too much of the past history. Surgery 3 years ago for spondylethesis L5 Grade 4. RSD symptoms started the day after surgery and have progressed to my whole body.
I've attempted to find triggers (dairy, weather, stress!) What triggers have anyone noticed?

Second, I live in Portland, and can not find a doctor here who is up to date in at least the last decade (Lol) of RSD CRPS knowledge of treatment and pathophysiology.
Any suggestions?
Hi Muse and welcome.
Sorry for not being able to with a doc in your area, I'm on the other side of the country.
A lot of folks refer to this website: http://www.healthgrades.com/physicia...ooshmand-x3sn8

Hope this helps...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (09-07-2014), Muse446 (09-08-2014), RSD ME (09-06-2014)
Old 09-06-2014, 08:51 PM #3
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Hi Muse - welcome!

Regarding triggers - there are so many things that trigger increased pain for me personally a few that stand out are: temperature fluctuations up/down of more than 10 degrees, tactile stimulation, even the slightest bit of cool air touching my legs, busy environments, emotions, vibration like from riding in a car, noise, being startled, taking a shower.. oh the list goes on. Unfortunately avoiding all these things will only make it worse..

Here is a doctor who I've seen recommended by others in your area: http://www.theportlandclinic.com/doc...k-kallgren-md/

Wishing you luck in finding a good care team!
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (09-07-2014), Muse446 (09-08-2014), RSD ME (09-06-2014), Russell (09-07-2014)
Old 09-07-2014, 10:59 PM #4
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Welcome ,
I'm sorry you are suffering with rsd ,triggers can be from many forms and mostly stress is the worse trigger .
Check also www.rsds.org and www.rsdhope.org you might find something that will help you with the triggers and how to learn to handle and avoid then.
gentle hugs with loving care ,Jesika .
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Muse446 (09-08-2014)
Reply

Tags
physician referral, portland oregon, treatment, triggers


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Need RSD/CRPS Doctor referral in Philadelphia PA cait24 Reflex Sympathetic Dystrophy (RSD and CRPS) 1 06-11-2013 06:22 AM
Need RSD/CRPS Doctor referral in Philadelphia PA cait24 Myasthenia Gravis 2 06-09-2013 12:04 PM
New crps- need doc referral meddy Reflex Sympathetic Dystrophy (RSD and CRPS) 7 06-27-2011 05:02 PM
Lost the love of my life because of CRPS/RSD Drew In FLA New Member Introductions 9 04-04-2009 06:45 PM


All times are GMT -5. The time now is 07:20 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.