Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-15-2014, 10:44 AM #11
Neurochic Neurochic is offline
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Curcumin is the active ingredient in turmeric. Virtually every piece of writing on either substance cites a diuretic effect for these substances alongside countless other claims. It's really important to factor in any diuretic (or any other claimed effect) for any so called natural substance or supplement before you consider taking it. Important also to ensure that it won't have any adverse reactions with any other medication you are taking for CRPS or other medical conditions.
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RSD ME (09-15-2014)

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Old 09-15-2014, 10:50 AM #12
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My initial rsd site (my right hand and wrist) have always been colder then my other sites. My pm dr initially put this sticky temp gage on the back of my hands to initially check for rsd. The rsd hand was alot colder.
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Old 09-18-2014, 06:18 PM #13
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Quote:
Originally Posted by Neurochic View Post
Curcumin is the active ingredient in turmeric. Virtually every piece of writing on either substance cites a diuretic effect for these substances alongside countless other claims. It's really important to factor in any diuretic (or any other claimed effect) for any so called natural substance or supplement before you consider taking it. Important also to ensure that it won't have any adverse reactions with any other medication you are taking for CRPS or other medical conditions.
Thanks for the info I wasn't going to be able to use it anyway due to the bleeding risk. The diuretic effects make it a double no. I research anything I take even if it's a "just" supplement or herb to make sure it doesn't interact badly with my many other problems and meds. I hope everybody else does this as well.

Thanks again,

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Old 09-28-2014, 05:52 PM #14
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I have a 14 degree difference between my ankles - it is common with RSD. My doctor used a sensor that looked like one of the ear thermometers often used with children to take their temperatures. They are called infrared thermometers and I actually just ordered one. I ordered the "Tempir Body Temperature" thermometer. It got good ratings and only cost about $40.

It is SO uncomfortable, isn't it? I often wear two socks, an oversized frog slipper (yes, I said frog LOL) and then wrap my foot in a blanket. Trouble is, most days I can't get a slipper on my foot due to sensitivity, but some days I can, which is a big improvement for me! I look forward to being able to wear a shoe soon, especially with winter coming and the coldness of my foot being so significant.

Hang in there my friend - I hope this information helps you!

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Old 10-02-2014, 10:06 PM #15
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Originally Posted by Supergirl123 View Post
I saw a new doctor who I was very impressed with. One of the things he did was measure the temperature difference between my affected and unaffected limbs. There was a difference between them. I was wondering who else has had this done and what the results were?
I don't recall anything about lower extremity values but I do seem to recall that a difference of 1.5 deg. C. difference from one nail bed to another on the unaffected hand is significant. Mine were done with infrared thermometer by an IME. There are published studies on this...
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