Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

Measurement of temperature difference between affected and no affected limbs

Reply
 
Thread Tools Display Modes
Old 09-12-2014, 05:41 PM #1
Supergirl123 Supergirl123 is offline
Junior Member
  
Join Date: Apr 2014
Posts: 17
10 yr Member
Supergirl123 Supergirl123 is offline
Junior Member
 
Join Date: Apr 2014
Posts: 17
10 yr Member
Smile
Quote:
Originally Posted by cdwall View Post
Before my bisphosphonate infusions (May 12-14, 2014), I could regularly get a 60 degree reading on my affected foot versus a 92-93 degrees (normal) on my unaffected foot when the affected foot was cold. Yes, over 30 degrees. The reason I got the thermometer was because I wanted to try biofeedback to see if I could change the freezing cold affected foot temps. I couldn't. Since my infusions, I rarely feel much difference nor do I measure skin temp. I just checked it and both are 93 degrees - the same.

I got a lot better in many ways after the bisphosphonate infusions in May after I got through the side effects but the affected leg continues to be extremely swollen and edematous which is still a huge problem. I'd say I've relapsed some but I've never been as bad as I was before them. I was already 14 months into it before the infusions with a lot of involvement.
,

CDwall,
I started taking tumeric caplets (medical name curcumin) for my swelling and within three months the swelling was gone. I highly recommend trying it. The only thing to know is with tumeric you can't take it if you are on an anticoagulent and if you need surgery you must stop it two weeks beforehand and can restart one week post surgery. For me it has been a miracle with the swelling and it also raised my good cholesterol the highest it has ever been, my doctor was very impressed!
Supergirl123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cdwall (09-13-2014), RSD ME (09-15-2014)
Old 09-13-2014, 12:12 AM #2
cdwall cdwall is offline
Member
  
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
cdwall cdwall is offline
Member
 
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
Default
Quote:
Originally Posted by Supergirl123 View Post
,

CDwall,
I started taking tumeric caplets (medical name curcumin) for my swelling and within three months the swelling was gone. I highly recommend trying it. The only thing to know is with tumeric you can't take it if you are on an anticoagulent and if you need surgery you must stop it two weeks beforehand and can restart one week post surgery. For me it has been a miracle with the swelling and it also raised my good cholesterol the highest it has ever been, my doctor was very impressed!
Hi,

Thanks for this info. Is tumeric considered a diuretic? Because anything like that, prescribed medicine or supplements, herbs, etc., has made my POTS symptoms much worse.
cdwall is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (09-13-2014), RSD ME (09-15-2014)
Old 09-13-2014, 02:32 PM #3
Russell's Avatar
Russell Russell is offline
Member
  
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default
Hey Super,
I was tested with some sort of meter and it showed a big difference between affected areas and the control areas. The affected areas were at least 6 to 9 degrees colder. I was told that a 6 or more difference shows a significant CRPS involvement.
FYI: Measure of degree difference is one of the required test for WC, at least in my state...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (09-15-2014)
Old 09-13-2014, 07:31 PM #4
Supergirl123 Supergirl123 is offline
Junior Member
  
Join Date: Apr 2014
Posts: 17
10 yr Member
Supergirl123 Supergirl123 is offline
Junior Member
 
Join Date: Apr 2014
Posts: 17
10 yr Member
Default
Quote:
Originally Posted by cdwall View Post
Hi,

Thanks for this info. Is tumeric considered a diuretic? Because anything like that, prescribed medicine or supplements, herbs, etc., has made my POTS symptoms much worse.
CD,
Tumeric is not a diuretic as far as I know and I haven't seen anything in the literature about it being one. It is an anti inflammatory and a very mild anticoagulent. The anti inflammatory properties are what help in reducing the swelling. One other thing I noticed the first official time I had the temperature between limb measured was with this new doctor and it was a few degrees difference. However I also noticed by touch that once I started taking tumeric the temperature difference seemed not as much as well. I am thinking the tumeric improves overall circulation and that is why the swelling g went down and the limb to me at least felt colder prior to my taking it.
I also read that 80% of patients with CRPS have temp difference but 20% don't. I found that interesting as well.
Supergirl123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (09-15-2014)
Old 09-15-2014, 10:44 AM #5
Neurochic Neurochic is offline
Member
  
Join Date: Sep 2011
Posts: 246
10 yr Member
Neurochic Neurochic is offline
Member
 
Join Date: Sep 2011
Posts: 246
10 yr Member
Default
Curcumin is the active ingredient in turmeric. Virtually every piece of writing on either substance cites a diuretic effect for these substances alongside countless other claims. It's really important to factor in any diuretic (or any other claimed effect) for any so called natural substance or supplement before you consider taking it. Important also to ensure that it won't have any adverse reactions with any other medication you are taking for CRPS or other medical conditions.
Neurochic is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (09-15-2014)
Old 09-15-2014, 10:50 AM #6
RSD ME RSD ME is offline
Senior Member
  
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default
My initial rsd site (my right hand and wrist) have always been colder then my other sites. My pm dr initially put this sticky temp gage on the back of my hands to initially check for rsd. The rsd hand was alot colder.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
Old 09-18-2014, 06:18 PM #7
cdwall cdwall is offline
Member
  
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
cdwall cdwall is offline
Member
 
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
Default
Quote:
Originally Posted by Neurochic View Post
Curcumin is the active ingredient in turmeric. Virtually every piece of writing on either substance cites a diuretic effect for these substances alongside countless other claims. It's really important to factor in any diuretic (or any other claimed effect) for any so called natural substance or supplement before you consider taking it. Important also to ensure that it won't have any adverse reactions with any other medication you are taking for CRPS or other medical conditions.
Thanks for the info I wasn't going to be able to use it anyway due to the bleeding risk. The diuretic effects make it a double no. I research anything I take even if it's a "just" supplement or herb to make sure it doesn't interact badly with my many other problems and meds. I hope everybody else does this as well.

Thanks again,

Denise
cdwall is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
How will my thinking be affected? Phidippus Epilepsy 3 11-03-2009 11:01 PM
How do you feel about your affected limbs? SandyRI Reflex Sympathetic Dystrophy (RSD and CRPS) 11 06-07-2009 08:40 PM
Autonomic PN - How Has it Affected You? BEGLET Peripheral Neuropathy 5 05-20-2009 09:54 AM
Injections on affected limbs TerriM Reflex Sympathetic Dystrophy (RSD and CRPS) 6 01-06-2009 10:21 PM
How are you affected? Pricklynic Peripheral Neuropathy 2 05-02-2008 03:29 PM


All times are GMT -5. The time now is 08:18 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home