Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-15-2014, 11:44 AM #41
HarryDresden HarryDresden is offline
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Quote:
Originally Posted by NurseKris View Post
I noticed you mentioned Toledo a while back, and I am in no way suggesting that the physicians are not qualified, but have you thought about going to the Cleveland Clinic. Before I considered attempting a more invasive procedure I went to the Clinic for another opinion. Dr Stanton-Hicks is an considered an expert in CRPS and is one of the authors in articles you have mentioned. I saw both him and Dr. Bruce Vrooman, another well published physician, and the examined me and went over all of my test results and physician notes. It was after seeing them, 5 months after my official diagnosis, that I accepted the the CRPS diagnosis.


Sorry for such a long post.
It seems that Stanton offers an online second opinion. I have never heard this before, any idea if its worth doing?
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Old 11-15-2014, 12:12 PM #42
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Harry, here is a thread from our vitamin forum all about the new data on Vit D:

http://neurotalk.psychcentral.com/thread92116.html

Fixing this is a good start.
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Old 11-15-2014, 03:30 PM #43
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Hi. I was a pointe ballerina, so I have had many broken toes. Each one felt slightly different and healed differently. Some took longer, some were more painful. But my experience with broken toes is not going to be the same as yours, every body is very different. But I would like to still share some things I learned to see if it doesn't offer you any reassurance.
First, the broken toe will atrophy. Sometimes not all the muscles, but some will. Uneven muscle strength in a body part can result in something very similar to crps until all the muscles are back to their strength.
Again with uneven muscles, the structure of the toe can be compromised. With some muscle that usually hold things in a place being weak, this can result in nerve pain. The tingling, stinging or over stimulated feelings can be incredibly uncomfortable
And thirdly, the whole toe is affected by the break, think of it as a broken toe, not just a broken bone. Doing things on a broken body part will upset it and make it swell and can result in some pretty horrible aches and pains on your down time.
I suggest some ibuprofen and some ice. Not too much of either though. And maybe keeping a journal on your recovery, because like I said, if not all muscles are back to their strength it can result in chronic pain until they are entirely strong.
I hope this was helpful. Feel free to ask me any questions. And be happy.
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Old 11-16-2014, 02:18 PM #44
HarryDresden HarryDresden is offline
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Originally Posted by mrsD View Post
There is not enough vit D in milk to
Provide the amount you need daily.
Have a test asap and get a level so you
Can supplement with D3 at a proper dose.
Do not use D2 which doctors still prescribe.
Low D will impair any bone healing.

Low D promotes osteopenia and osteoporosis.

If you drink alcoholic beverages this also
Affects the feet and nerves. Same with smoking,
As smoking reduces blood flow to the legs and
Feet.
The dose for D3 is 1000IU daily for every 10 points
You need to raise. Use 50 as your goal.
So for example-- a level of 20 needs 3000IU daily.
Also, go to Walmart and get the Morton Epsom lotion
And apply to the top of your foot and ankle about
A quarter sized dollop and rub it in daily. This will help with
Pain and swelling better than epsom salts. $5.95 in the first aid
Section.
Sorry to be brief but typing on this phone is difficult!
Based on your advice and my doctors i picked up some vitimin D3, omega3 fish oil and a multivitimin. Thanks again for the advice.
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"Thanks for this!" says:
mrsD (11-16-2014)
Old 11-17-2014, 12:46 PM #45
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http://www.rsds.org/Research_Article...neuropathy.htm
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Old 11-17-2014, 06:47 PM #46
NurseKris NurseKris is offline
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Quote:
Originally Posted by HarryDresden View Post
It seems that Stanton offers an online second opinion. I have never heard this before, any idea if its worth doing?
To be honest I had a family member assist with the consult with Dr Stanton-Hicks. However if it was me in your situation I would go ahead with the online second opinion. You have documented your symptoms very well which will give him a pretty accurate picture. He is a very busy man so don't expect an answer right away.

My personal opinion is to try the supplements that have been suggested. They have been presented in a way that makes me want to try adding some more, as long as they do not interact with my current medications.

There are so many studies out that show magnesium is more beneficial than we thought. I currently take it because I used to get horrible migraines. The last really bad one I ended up in the hospital I was given it via IV and it helped so much. Also I have had doctors suggest it to patients for leg cramps and spams

Good luck
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