Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-05-2014, 08:35 AM #11
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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Originally Posted by HeidiB View Post
I wanted to say thank you to everyone again for all the well wishes, good vibes, & heartwarming sweet kind words from eveyone I cant begin to tell you how much it's ment to me as well as how much you have all helped to keep me going when things have looked so grim for me or I've been so down thinking of giving up I have come here & remember I am not alone in this fight & I cant ever say thank you enough for giving me the support & understanding but most importantly friendships that mean so much...THANK YOU!
I had a doc appointment this past friday that went sooooo badly, The doc who Ive seen about 2yrs now left & went some place else the doc who took his place sat there looking at me like I was a crack head, wanted to take me off my pain meds & put me on Lyrica! I asked if he knew about RSD he said O yea I've had "alot" of paients with this I asked if he had delt with Generalized RSD (full body head to toe) like myself he changed subject which told me NO I asked him if he were me what would he do? NO answer of course I said you know what doc I'm NOT trying to be difficult but after 10yrs of nothing but massive amounts of pain 24/7 to have something take just a slight edge off is keeping me from going nuts & I think I deserve that at this point I said I went from a single active healthy Mom who worked at least 1 full time job always on the go etc to my life changing over night & after dealing with this for 10yrs I think I am "dealing" the best I can considering so really think the going back to no pain meds isnt going to work for me He had already told me prior to this btw I should find a new doctor! so I felt I should put him in his place but had my grandma & mom there so out of respect of my grandma I said that to him but wanted to tell him to screw himself & his god complex he had his mind made up on me before he walked in so I am really hoping to get in where the doc I was seeing went to so he can keep treating me he has been the only doc I have found who listens to me as a person not the normal Im the doctor crap & that is really hard to find. this new doctor has lost alot of paients from what we were told to so we wont be goin back there..He gave me a couple names of pain mangment places & told me go there cuz they will give me what I want my mom & I said if we wanted a pill mill we wouldnt have come here..this guy was such a jerk I couldnt believe it I did however get my pain meds for the month so gives me a little time to get in someplace so thats what I delt with for this appointment so frustrating...K Im done venting lol hope you all are doing well & know I'm thinking of all of you & pray for earch of you thank you all again for all you are & for being here always
I'm so sorry you had to deal with that doctor. I got so sick of dealing with people like that and found that just cutting out that sort of stress from my life made me feel so much better...both mentally and physically because that stress was doing a number on my RSD. I hope you are able to get in where your previous doctor went...when you find a doctor who is a good fit for you that is a real blessing. Good luck and take care...keep us posted.
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HeidiB (11-16-2014)
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