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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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The question that I have is this.
The med cocktail I take does a very good job except during periods of weather triggers. Such as humidity, rain, cold, hot breezes, physical exertion, ect. What do some of you take at times of triggers to help out with the higher than usual pain? ![]()
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#2 | |||
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Junior Member
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That is a good question. I don't have an answer. I was hoping more people would have responded.
When I have a flare up I just double up on some of my meds (only the ones I am allowed to double). I know that's not much help, sorry.
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. . Phaedra |
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"Thanks for this!" says: | Russell (09-20-2014) |
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#3 | ||
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Member
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Look into de-humidifiers and Hepa Filter-air purifier.
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#4 | |||
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Member
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Today I was doing my best to pull weeds and every time I stood up, or tried to, my legs started trembling and felt like being shocked then I blacked out and collapsed.
These are the triggers I'm talking about. When I fell I hit my left shoulder (my CRPS started in my left arm) and the pain in my left arm/hand is high on the scale. I wish I had some way of relief. Time for my six o'clock meds. Maybe that'll help...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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"Thanks for this!" says: | Phaedra (09-25-2014) |
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#5 | |||
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Junior Member
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I hope you are feeling better soon. Other than being in more pain did you cause any new damage? I know some days I think I can do some of the things I used to do, but when I try it only takes about 15 minutes to realize it aint so. Any way hope you feel better soon.
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. . Phaedra |
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"Thanks for this!" says: | Russell (09-24-2014) |
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#6 | |||
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No real damage. Just a sprained finger and my pride.
I am really upset that I have such a hard time doing things I used to find easy and enjoyed. Thanks for listening to my rant...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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"Thanks for this!" says: | Phaedra (09-25-2014) |
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#7 | |||
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Senior Member
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I don't have meds for my flare up pain...but I do have a specific protocol of treatment that I follow for bad flare ups. These are the steps:
1. Hot bath with Epsom salts. 2. Ultrasound heat therapy on the worst areas. 3. tDCS treatment 4. TENS unit treatment on worst areas (if I can surround the area with electrodes...if I can't I skip this step). 5. Heating Pad/Patches 6. Rest for the rest of the day (if more than a day of flare up pain then I add in physical therapy exercises throughout the day). The last few years...this protocol gets me back to my normal pain levels usually after a day or two. I repeat as much as needed...sometimes 2-3 times per day depending on pain levels. |
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#8 | |||
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Oooooo!
I think I'll try the hot bath. Right now that sounds good...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#9 | ||
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#10 | |||
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Senior Member
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I havent found anything that works for the storms. I can feel them coming though.
I have found that not taking the meds on a set schedule helps a lot. When I was taking the meds on a time clock schedule, they seemed to not work as good. One day my doctor asked if I was doing that, and I told him I was. He told me to change up the times, and sometimes the dosage so my body wouldnt get too used to that schedule, and start screaming for them before it was time. It worked, so now I mix it up every couple of days so my body isnt anticipating the meds, and my body doesnt know to want them at a certain time. ![]()
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. Gone Squatchin |
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"Thanks for this!" says: | Phaedra (10-04-2014), visioniosiv (09-29-2014) |
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