Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 09-17-2014, 06:14 PM #1
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default A question???

The question that I have is this.
The med cocktail I take does a very good job except during periods of weather triggers. Such as humidity, rain, cold, hot breezes, physical exertion, ect.
What do some of you take at times of triggers to help out with the higher than usual pain?
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
Old 09-19-2014, 09:05 PM #2
Phaedra's Avatar
Phaedra Phaedra is offline
Junior Member
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Phaedra Phaedra is offline
Junior Member
Phaedra's Avatar
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Default

That is a good question. I don't have an answer. I was hoping more people would have responded.
When I have a flare up I just double up on some of my meds (only the ones I am allowed to double). I know that's not much help, sorry.
__________________

.

.

Phaedra
Phaedra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Russell (09-20-2014)
Old 09-23-2014, 12:38 PM #3
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Look into de-humidifiers and Hepa Filter-air purifier.
Jimking is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (09-25-2014), Russell (09-23-2014)
Old 09-23-2014, 04:53 PM #4
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Today I was doing my best to pull weeds and every time I stood up, or tried to, my legs started trembling and felt like being shocked then I blacked out and collapsed.
These are the triggers I'm talking about.
When I fell I hit my left shoulder (my CRPS started in my left arm) and the pain in my left arm/hand is high on the scale. I wish I had some way of relief.
Time for my six o'clock meds. Maybe that'll help...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (09-25-2014)
Old 09-23-2014, 07:53 PM #5
Phaedra's Avatar
Phaedra Phaedra is offline
Junior Member
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Phaedra Phaedra is offline
Junior Member
Phaedra's Avatar
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Default

I hope you are feeling better soon. Other than being in more pain did you cause any new damage? I know some days I think I can do some of the things I used to do, but when I try it only takes about 15 minutes to realize it aint so. Any way hope you feel better soon.
__________________

.

.

Phaedra
Phaedra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Russell (09-24-2014)
Old 09-24-2014, 06:09 AM #6
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

No real damage. Just a sprained finger and my pride.
I am really upset that I have such a hard time doing things I used to find easy and enjoyed.
Thanks for listening to my rant...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (09-25-2014)
Old 09-26-2014, 08:46 AM #7
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
Default

I don't have meds for my flare up pain...but I do have a specific protocol of treatment that I follow for bad flare ups. These are the steps:

1. Hot bath with Epsom salts.

2. Ultrasound heat therapy on the worst areas.

3. tDCS treatment

4. TENS unit treatment on worst areas (if I can surround the area with electrodes...if I can't I skip this step).

5. Heating Pad/Patches

6. Rest for the rest of the day (if more than a day of flare up pain then I add in physical therapy exercises throughout the day).

The last few years...this protocol gets me back to my normal pain levels usually after a day or two. I repeat as much as needed...sometimes 2-3 times per day depending on pain levels.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moosey2me (10-08-2014), Russell (09-26-2014)
Old 09-26-2014, 06:02 PM #8
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Oooooo!
I think I'll try the hot bath. Right now that sounds good...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (09-26-2014), moosey2me (10-08-2014)
Old 09-26-2014, 06:32 PM #9
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
Default

Quote:
Originally Posted by Russell View Post
Oooooo!
I think I'll try the hot bath. Right now that sounds good...
Some like hot, but others like warm. Hot water may or may not aggravate your condition. Experiment.

I like warm; I take a warm bath every morning.
birchlake is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (09-26-2014), Russell (09-26-2014)
Old 09-27-2014, 12:54 AM #10
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default

I havent found anything that works for the storms. I can feel them coming though.

I have found that not taking the meds on a set schedule helps a lot. When I was taking the meds on a time clock schedule, they seemed to not work as good. One day my doctor asked if I was doing that, and I told him I was. He told me to change up the times, and sometimes the dosage so my body wouldnt get too used to that schedule, and start screaming for them before it was time.

It worked, so now I mix it up every couple of days so my body isnt anticipating the meds, and my body doesnt know to want them at a certain time.
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Phaedra (10-04-2014), visioniosiv (09-29-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
Question about MG Snifhvide Myasthenia Gravis 4 07-14-2008 05:03 AM
Mrs. D, question please? Aussie99 Peripheral Neuropathy 7 07-06-2007 07:38 PM
A question Alkymst Peripheral Neuropathy 10 07-03-2007 08:08 PM


All times are GMT -5. The time now is 12:58 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.