Hi Joopiter296,

Gosh we're almost twins, but I'm afraid mine has spread all over the place

I do not live in your area, but I do have an initial consult for out-patient ketamine the first week of November. I can't seem to find anyone accepting new patients for in-patient in my area and there are just a handful of practitioners in the state that even do the ketamine treatments; so I was pretty stoked just to get this appointment.

Like you I have no idea about what insurance will cover. I suppose I'm about to find out.

Best of luck with your treatment! Please keep us posted!

I'm so sorry to hear that yours has spread so much. I'm always curious...did something you know of cause it to spread? I can't imagine mine spreading anymore that what it has up my leg because just to have one limb so badly affected is agony. I'm in so much pain, i can barely move and have no idea how i will be able to tolerate such a long trip or even sit up for the office visit. I'm flat out with the foot elevated 24/7. Please keep me posted on your progress as well. I'm anxious to hear how your appointment goes

Gosh that just sounds terrible. I'm so sorry hon. CRPS can be so brutal. Just try and stay focused on the help you will be receiving. Is it possible to try and start moving around a little bit in advance? Of course I'm not a doctor and you'd want to check with yours first on any restrictions you might have.

I really have no idea why mine spread. It was several years before spread started to where I'm at now. It's beyond time for ketamine for me I think. Of course I am a little nervous as anyone is with any treatment I think, but I am trying to remain focused on the potential relief. I have heard such good things!

Sweet.. I will keep you posted and you do the same.. okay?

Best of luck! Vrae

The Hospital for Special Surgery in NYC is starting a trial for CRPS. 5 days inpatient plus epidural, 4 hr infusions at 1, 2, & 3 months after, plus f/u visits.

Trial commitment is 6 months and probably won't begin until January, 2015.

Control group gets epidural and sedative, which would offer some relief at least.

646-714-6270 - Jodie



Shaggy

Here is the link to the trial: http://clinicaltrials.gov/show/NCT02094352

Are you sure that the control group will be getting an epidural infusion with pain medications? It reads to me like it will be a 'saline' epidural infusion?

Thanks for sharing,
Tessa

the control is saline with sedative in IV as well as an epidural.

I called today to clarify and the control group will be given a 'saline epidural infusion and booster saline infusions'. They explained that it would interfere with the control group to give medications of any kind as it would skew the results. At least that was my understanding in the explanation given to me.

That is the thing with trials since one never knows if they will be the one receiving the placebo.

Good Luck!