Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-14-2014, 05:26 PM #11
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catra121 catra121 is offline
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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Quote:
Originally Posted by ShaggyChic_1201 View Post
I am seeing a PM doc, but the ONLY thing he will do is SCS (leads). Won't write for PT, massage, OT or anything. I've never been addicted to anything and yet he will only write script for 100mg tramadol prn (NTE 8). I dont even bother to take it since it does nothing.

Your comments on the sling are accurate. The problem is my shoulder is so unstable that walking, sneezing, reaching, or random muscle contractions cause it to partially dislocate. Each time it occurs, the brachial plexus gets jarred and sends out a cascade of pain signals around my clavicle, shoulder and armpit. The CRPS seems to like the company, so it flares too.

I can't have surgery to fix my shoulder til CRPS is under control. Can't seem to get CRPS under control til my shoulder is fixed.

What's a girl to do?
With treatment restrictions like that you are not going to improve...so you need to try and find a new doctor. I know how frustrating that can be...I got bounced around from doctor to doctor for a while before finding one that was a good fit and helped me get where I needed to be. Time is of the essence with RSD and you can't waste much time with a doctor who is just flat out refusing to actually TREAT your medical condition.

Wishing you the best of luck...take care of yourself!
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