NeuroTalk Support Groups - Advice Needed, Just Diagnosed with CRPS

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Advice Needed, Just Diagnosed with CRPS (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/211291-advice-diagnosed-crps.html)

Quote:

Originally Posted by DanPain (Post 1105489)

So I had the lumbar nerve block today. I did feel a difference in pain and sensitivity but not all the way to my toes. After about 1 hour it was gone, thats all I got. They scheduled me next week Tuesday for an additional block.

I will continue to do my physical therapy, I was just approved by my ortho doctor I can start putting weight on my leg (25% this week). I had already been putting some weight on it but now I will go a little bit further. I will hit the pool every day. I am hoping I will the block next week will work better and for longer.

Visioniosiv regarding below
***Applied DMSO 50/50 mixed with vegetable glycerin to affected area 3-5x daily for 90 days***

I got some DMSO cream but it says it is for solvent purposes only?

There are lots of different types of DMSO creams/compounds you can buy online. I don't have personal experience with a premade cream so I can't comment on their effectiveness either way.

I bought pure grade, 99.99% DMSO online, and then diluted it to 50% using vegetable glycerin which I purchased at a health store. The gylcerin gives the resulting solution more cohesiveness and is easier to apply to the skin. You could apply it with a paintbrush but I just used my fingers.

The main advice I would give is 1) Wash your hands before and after usage, as DMSO IS very solvent and will carry any chemicals/etc on your hands directly to the bloodstream, and 2) the topical cream or solution applied should not exceed 50% DMSO. You could go 60-40 or 70-30, but that risks irritating the skin. I didn't have any issues with skin sensitivity, but like anything else, individual results can vary.

Besides being a free radical scavenger with anti-inflammatory effects, DMSO's solvency is what allows it to penetrate the skin and directly impact the affected area.

Oh - and the smell ain't particularly pleasant:) Kind of garlicky. It is absorbed by the body so fast I could taste it within seconds.

Quote:

Originally Posted by visioniosiv (Post 1104819)

Hm...

Not saying this is BAD advice HD - in fact I think all information is equally valuable and I definitely get a lot out of reading current medical literature. I just feel some personal dissonance with the phrase "high levels of trust" as applicable to current journals, studies, and renowned doctors. Caveat emptor.

I understand the sentiment, my goal was to communicate to Dan that this is a confusing topic and he shouldn't be surprised or feel he is to blame when he gets conflicting reports, treatment options and advice.

Hi everyone, please excuse me for any mistakes I make while trying to post replies. I'm not all that familiar with posting on message boards (I know that sounds odd since we live in the age of technology).

Since this threat was already started and I didn't see the point in starting a new one based on the same context, I just wanted to say that I too have been recently diagnosed with CRSD and now the doctor wants to start doing injections. We are pretty sure the CRSD was triggered by a recent surgery of a bone in my foot, however after reading some of your posts and comments, I am beginning to think I have had CRSD for many years and didn't know it?

Anyway, these injections sound pretty scary. I wish you the best DanPain and hope you feel better soon. I would like to know if after your first injection, did you have any side effects? Like, extra swelling, tenderness, nausea, etc. It seem my body is "allergic" to just about anything made under the sun, including the sun, so I was just wondering exactly how uncomfortable are these procedures?

thanks,
sillychic

sillychic