Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-06-2007, 02:40 PM #1
dealingwithtos dealingwithtos is offline
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Default STS Machine

Hi Everyone.

Have any of you used a STS Machine for RSD? It's supposed to be a new form of alternative therapy. It's sortof like a tens machine, but it's not invasive. It's small jolts of electrical current through 8 small sized probes - aimed to "restart" the sympathetic nervous system. It's a series of therapy sessions - 1 hour x1 or x2 per day. Anybody heard of this?
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Old 06-06-2007, 10:45 PM #2
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Hi there,

No, I hadn't heard of it, so I looked it up. I think it looks pretty interesting.

Didn't find anything too informative but its inventor, Dr. Donald Rhodes, has a clinic website in Corpus Christi, Texas - quite a good website, well written and not pushy at all.

I think their approach looks really sensible, everything is geared to improve the circulation and get more blood into the affected areas. I personally think that's crucial.
Here's the appropriate web page:
http://www.paindefeat.com/wiki/PDFT/...PainTreatments

Here's a "my story" from a 16 year old who's had RSD for 8 years:
http://www.zaprsd.com/aboutme.htm?PH...bfed10eac019ba

If there was one of these machines here in Hong Kong (but maybe there is, I'll check it out) I'd definitely give this a go.

Thanks for letting us know about it - have you tried it, or are you going too? Most machines I have a problem with when used directly on my hand (too much vibration, movement I can't control etc), but somehow - just guessing - this doesn't look like it'd be like that.

Let us know what it's like, please
all the best.
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Old 06-07-2007, 01:58 AM #3
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I like the looks of that program too. But I have a serious question about it, the same question I have about a TENS unit.

I was sent, by a very gracious lady here in our forums, a tens unit free of charge! But now that it is here, I am afraid to try it. I have used one in the past, it was a great help. But I got online to check out placements for the electrodes, and found several warnings regarding people with epilepsy (like me) having seizures from using a tens!! I didn't have epilepsy when I last used a tens unit, so I was totally unaware of the risks. So, apparently, was my dr.... she tried to get approval of a tens from my ins. co. (But she knew I would never agree to go to PT 3x a week).

Anyone here familiar with this problem? I'd appreciate some advice or comments. I DO plan on trying this tens unit out... I have just had a bad streak recently, and want to wait for a more stable time in which to do it. I will certainly be able to try it by the end of the week, I will post again and let you all know how it goes.
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Old 06-07-2007, 02:51 AM #4
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Hi,

I think a Tens is very different; I tried it at the PT clinic and couldn't bear it, maybe it was just me or wasn't set properly, but I had to stop it immediately, horrid buzzing jolting sensations. Most of these things aren't too good for anyone with skin sensitivity problems, though I could be wrong, I think some RSDers get on OK with a Tens....

But I don't think this STS machine is at all the same thing...

Oops, forgot - I googled ["TENS unit" epilepsy] and it seems to to say use caution!!

And, speaking of circulation, I've been prescribed Hirudoid cream and have now been using it for 5 weeks. It's normally used to heal scar tissue by increasing circulation, and I think it's a help. I'm going to get them to give me a stronger version next time.

all the best!

Last edited by artist; 06-07-2007 at 05:09 AM. Reason: forgot!..
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Old 06-07-2007, 05:42 AM #5
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Morning Everyone,

I've tried the STS machine. It wasn't the thing for me to do. First off they place the electrode patches where you have RSD...couldn't handle anything touching those areas. Secondly they weren't honest in telling me who should and shouldn't try this therapy. Anyone who has metal in their bodies shouldn't use the STS. I had at the time a SCS and they knew it but went ahead and told me it was safe to use as long as the SCS was shut off. That wasn't true...if you have metal in your body, it can heat up and burn the tissues and /or organs that are close to the metal. I experienced that and it wasn't pleasant ( I complained from the beginning that it felt like my insides were on fire...by the 3rd treatment it was unbearable, so I stopped treatment. Found out that they hadn't done any research at the time, to see what happened to people with metal in there bodies).

So if you give it a try PLEASE research and ask lots of questions!!! They were more interested in getting people to try the STS than they were in our health and welfare.

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Old 06-07-2007, 06:07 AM #6
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Hey Cjay!

Aaaaiiiiyahhh!! (as they say here) nope, don't think I'll bother with that any more, you've put me off it for life, very effectively. Burnt insides, ye gods
Thanks so much for letting us know, isn't sharing info a truly wonderful thing?!

all the best
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