Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-04-2014, 02:11 AM #1
latemodel1 latemodel1 is offline
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latemodel1 latemodel1 is offline
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Default rsd moving

I've has rsd since 2010 left hand and wriste surgeryon the median nerve for removal of a tumor. I have been through all the blocks and taken truck loads of pills and even done the ketamine infusions. Its just kept it tolerable.
I recently had my mother pass away unexpectently and with the stress that has caused it triggered a spread to my right shoulder and face. I am also having tremors to the effected areas. I am scheduled to go in for another ketamine infusion soon. Has anyone else had it spread due to stress?
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Old 12-04-2014, 04:14 AM #2
CRPSsongbird CRPSsongbird is offline
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Default Unfortunately yes!

I'm sorry to hear about you're loss. I lost my Dad in '09 and understand how awful it is. Yes severe emotional pain and stress can Trigg a flare up, which in turn could cause a spread. Sucks huh? I'd call your doctor and report your new symptoms/spread, unless you already did lol. Have you ever tried Lidocaine instead of Ketamine? They're similar, but my doctor really likes lidocaine for spasms and the autonomic dysfunctions. I'm definitely not a doctor but maybe, especially if the Ketamine isn't as helpful as you'd like, it would help. Might be worth talking to your doc about anyway. I really hope you are able to find some relief of some kind! Going through a loss like yours is hard enough already, to dump worsened crps pain on top of that...I really do pray you get the help you need soon.
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Old 12-04-2014, 06:31 PM #3
LISAR624 LISAR624 is offline
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Default

Quote:
Originally Posted by latemodel1 View Post
I've has rsd since 2010 left hand and wriste surgeryon the median nerve for removal of a tumor. I have been through all the blocks and taken truck loads of pills and even done the ketamine infusions. Its just kept it tolerable.
I recently had my mother pass away unexpectently and with the stress that has caused it triggered a spread to my right shoulder and face. I am also having tremors to the effected areas. I am scheduled to go in for another ketamine infusion soon. Has anyone else had it spread due to stress?
I lost my mom In July 2013. She was my biggest supporter and I miss her daily since I have lost quite a few of friends & family! I think stress can bring the RSD flare-up. That is what I am dealing with right now! LISAR624
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