Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-15-2014, 12:17 PM #11
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Originally Posted by maygin View Post
visioniosiv - I'll admit that some of the positive spiritual things your post mentioned weren't things I paid much attention to the first or second time I read your post. But I had this moment yesterday where I realized that I have focused my energy on bending the world around me - getting better socks, seeing the best doctors, etc. but I hadn't taken the time to bend the energy within me. And until I do that - until I can forgive myself - simply bending the world around me won't be enough. I very much blame myself for getting injured, but oddly enough, not for what's happened since. Very early on, before I even knew I had RSD, a friend pointed out that I talk about my foot like its a separate entity, not part of my body. I still talk that way to this day. I blame the nerves for overreacting. But I blame myself for giving them the opportunity to overreact. Anyway, I have decided to more consciously move towards doing mediation and looking at Buddhism. I have wanted to do both for awhile, but never prioritized it and also felt that as a scientist, it likely wasn't for me. But I think now it might be.

I want to thank you for taking the time to respond. I logged on today to post a rant about this condition. I didn't want to rant to my friends on Facebook, so I thought I would reach out here. Every time I feel like I take a step forward, something new pops up, sending me at least a step, if not more back. But this post reminded me that while I can feel angry, and I do need to let it out, I also can breathe, let it go, and keep moving forward. Any new issue doesn't have to hold me back or slow me down. Thank you. I needed this more than words can express.
You're so welcome Maygin and I'm really really really happy to've been at the right place at the right time.

I was not a spiritual person in my previous life at all. I was highly analytical and skeptical (and remain so - I try everything but believe nothing I've not experienced myself.) I did think that there was a Creator because of the very evident and overwhelming complexity of the reality we perceive, but did not think this Creator was benevolent. I mean - how do we reconcile the injustice and suffering in the world with an omnipotent and perfect "being?" I thought It was ambivalent at best.

But we're already perfect and we're just now allowing ourselves (sometimes gently, sometimes forcefully) to realize that.

Side note on meditation - check out the lessons at AYPsite dot org for an interesting take on spirituality from a Western spiritual scientist. I'm gradually releasing that need to "bend the world around me" as well. Well said.

And check it out - picobill just hooked you up with the best socks around, so you got exactly what you were looking for.
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maygin (01-12-2015), RSD ME (01-13-2015)

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Old 01-12-2015, 08:43 PM #12
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Update: the doctors confirmed my fears - the CRPS is worsening and progressing. It's moved into my ankle. The pain is better managed than it was before, but it's not really the yard stick since meds are just stopping me from feeling the pain - not stopping the pain itself. The fact that my foot is now cold all the time and that there are significant skin and nail changes indicates the disease itself better. My orthopedist, pain management doctor, and my new PT all agree that I need a nerve block, so I'll be doing that in a few weeks. In the meantime, I'm hitting this condition with everything I can -acupuncture, chiropractic, medications, therapy, relaxation, meditation, and PT. Most important, I'm trying to stay positive. Want to follow my journey? Check out my Facebook page*edit*

Last edited by Jomar; 01-12-2015 at 10:02 PM. Reason: sorry - no linking/redirection for new members..
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Old 01-13-2015, 11:46 AM #13
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Please be careful I was given acupuncture Jan 2010 2 of the wounds are still visible
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