Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-07-2007, 04:36 PM #1
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
Default riddle me this?

here's the scenario:

three different rsd "specialists"

1st specialist: accuses me of self mutilating with heating pad and looking for monetary gain for work comp settlement.

2nd specialist: diagnosis of rsd but stellate ganglion block down without fluoroscopy and nothing achieved.

3rd specialist: diagnosis of sympathetically maintained pain but no rsd.

WHAT!!!

have any of you ever heard or been told any of these things? I'm losing my grip.
jennyk38 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-07-2007, 05:10 PM #2
septmystic's Avatar
septmystic septmystic is offline
Junior Member
 
Join Date: Jan 2007
Location: PA
Posts: 68
15 yr Member
septmystic septmystic is offline
Junior Member
septmystic's Avatar
 
Join Date: Jan 2007
Location: PA
Posts: 68
15 yr Member
Default

Don't lose that grip - hang on, cause this is typical. It took me 6 years for a diagnosis of RSD. I was suffering from many ailments according to which doctor I saw and the specialists were the worst. So according to the doctors in the past I suffered from the following:
1. Tennis elbow - moved from one arm to the other because my mind is making up pain!
2. Pinched nerves in my neck - had many shots for that one - NOTHING!
3. I am depressed and producing pain with my mind.

and it goes on and on.
Remember, keep a journal of all your symptoms, get angry and take charge only YOU know what's what.

And of course - get support from other RSDers.
__________________
Septmystic
"For mankind to truly see, they must first look beyond their own ego"
septmystic is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 08:16 PM #3
unrouley1 unrouley1 is offline
Member
 
Join Date: May 2007
Location: Illinois
Posts: 131
15 yr Member
unrouley1 unrouley1 is offline
Member
 
Join Date: May 2007
Location: Illinois
Posts: 131
15 yr Member
Default

OOOOOOOOO. with the mood i'm in i feel like swinging at those doctors. i thank GOD i didn't have any of those problems from a professional. now, my husband on the other hand has said some horrible things to me about wanting attention.

YEAH LIKE I WANT TO TAKE MASSIVE AMOUNTS OF DRUGS EVERY DAY SO THAT I CAN FUNCTION. AND OF COURSE I WANT TO HAVE A NEEDLE STUCK IN MY NECK EVERY OTHER STINKING DAY. AND I WANT TO GET FAT. AND I WANT TO HAVE SORES ALL OVER MY BODY BECAUSE IT IS OH SO ATTRACTIVE WHEN I WEAR SLEEVELESS SHIRTS. OH AND I FORGOT ABOUT THE THRUSH.

can't you just come and see my doc in champaign???
__________________
i thank you God for this most amazing day, for the leaping greenly spirits of trees, and for the blue dream of sky and for everything which is natural, which is infinite, which is yes.

- e. e. cummings
unrouley1 is offline   Reply With QuoteReply With Quote
Old 06-08-2007, 04:17 AM #4
theoneRogue420's Avatar
theoneRogue420 theoneRogue420 is offline
Member
 
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
15 yr Member
theoneRogue420 theoneRogue420 is offline
Member
theoneRogue420's Avatar
 
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
15 yr Member
Default

Unrouley, it sounds more to me like someone needs to come visit your hubby! Grrrrr! Michael has said hurtful things occasionally...around 3-5 in 8 years, so I can't complain, lol. But it sounds like your hubby needs to have his head examined.

How anyone can think we'd choose to live life this way is unimaginable. (I just spent 10 minutes trying to figure out where to put Lidocaine patches... I gave up, hurts everywhere equally badly tonight)

Now comes the part where I say he'd better watch out... Kharma is a b***h. You'll hear that from me often, lol... it's a coping mechanism, I guess, cuz otherwise this world is just waaayyy too unfair for me to handle.
__________________

There are only two types of people in this world... those who bring you peace and those who don't.
theoneRogue420 is offline   Reply With QuoteReply With Quote
Old 06-08-2007, 07:45 AM #5
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
jennyk38 jennyk38 is offline
Junior Member
 
Join Date: May 2007
Location: Illinois
Posts: 97
15 yr Member
Default champagne

Quote:
Originally Posted by unrouley1 View Post
OOOOOOOOO. with the mood i'm in i feel like swinging at those doctors. i thank GOD i didn't have any of those problems from a professional. now, my husband on the other hand has said some horrible things to me about wanting attention.

YEAH LIKE I WANT TO TAKE MASSIVE AMOUNTS OF DRUGS EVERY DAY SO THAT I CAN FUNCTION. AND OF COURSE I WANT TO HAVE A NEEDLE STUCK IN MY NECK EVERY OTHER STINKING DAY. AND I WANT TO GET FAT. AND I WANT TO HAVE SORES ALL OVER MY BODY BECAUSE IT IS OH SO ATTRACTIVE WHEN I WEAR SLEEVELESS SHIRTS. OH AND I FORGOT ABOUT THE THRUSH.

can't you just come and see my doc in champaign???
hey girl,

thought i'd never hear from you again! Champagne is definitely not out of the question. i'd rather drive there than chicago. i need to wait now until after my next "indepndant" medical exam from the state because right now they refuse to pay for any of my dr appointments, meds, blocks, etc so i have paid over 1,000 to see all of these "specialists" on my own and don't have any more moulah. I tell ya what, i really feel for you. i don't know how you are handling everything you have going on. my kids are 10 and 16 so at least they don't need as much help as little ones. what kills me is trying to do laundry, grocery shopping, etc. i don't why your husband is acting the way he is but it can't be good for you. ever tried bringing him with to appointments or going to counseling? i've been divorced for almost ten years so i don't have to deal with that but being alone is pretty tough too. did you ever get my pm? didn't hear back so i wanted to make sure i didn't say anything to offend you i feel like i'm going crazy half the time myself. the depression and anxiety are sometimes almost more than i can bear. actually went and made out my will a couple of weeks ago. i'm wondering how quickly you were diagnosed with rsd after symptoms started? have the sgb blocks done you any good? are they talking about scs or pumps or anything? just wondering cuz every doctor i see suggests something different and i'm very confused. well, again i'm glad to hear from you. i live in kankakee by the way. do you live right in champagne? pm anytime and i hope you have the best day possible jenny
jennyk38 is offline   Reply With QuoteReply With Quote
Old 06-08-2007, 11:51 AM #6
unrouley1 unrouley1 is offline
Member
 
Join Date: May 2007
Location: Illinois
Posts: 131
15 yr Member
unrouley1 unrouley1 is offline
Member
 
Join Date: May 2007
Location: Illinois
Posts: 131
15 yr Member
Default

kankakee! i live about 45 mins south! near paxton... check your PM.
__________________
i thank you God for this most amazing day, for the leaping greenly spirits of trees, and for the blue dream of sky and for everything which is natural, which is infinite, which is yes.

- e. e. cummings
unrouley1 is offline   Reply With QuoteReply With Quote
Old 06-08-2007, 08:53 PM #7
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Quote:
Originally Posted by jennyk38 View Post
here's the scenario:

three different rsd "specialists"

1st specialist: accuses me of self mutilating with heating pad and looking for monetary gain for work comp settlement.

2nd specialist: diagnosis of rsd but stellate ganglion block down without fluoroscopy and nothing achieved.

3rd specialist: diagnosis of sympathetically maintained pain but no rsd.

WHAT!!!

have any of you ever heard or been told any of these things? I'm losing my grip.
[COLOR="Blue"]Jenny, seems to me we have the same Dr.!! I am serious.. my PD.(excuse me, ex pd).. all of the above.. except the heating pad episode. this dude needs Bit&ch* slapped. sorry your having a rough time. In almost 2 and a half yrs. I actually wanted to smoke(not because of RSD) because we had to take shelter here for a tornado.. sirens blaring.. anyway we did not get the tornado, I did not smoke, my little girl was freaking out, made my pain even higher level(10))[ I did not smoke, Our yard, however was all damaged. 80mph wind, daughter's swing completely toppled over, tree split in half, glider top ripped off.. much large tree branches, rain, hail etc.. /COLOR]
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 06-08-2007, 08:57 PM #8
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Heart

Quote:
Originally Posted by unrouley1 View Post
OOOOOOOOO. with the mood i'm in i feel like swinging at those doctors. i thank GOD i didn't have any of those problems from a professional. now, my husband on the other hand has said some horrible things to me about wanting attention.

YEAH LIKE I WANT TO TAKE MASSIVE AMOUNTS OF DRUGS EVERY DAY SO THAT I CAN FUNCTION. AND OF COURSE I WANT TO HAVE A NEEDLE STUCK IN MY NECK EVERY OTHER STINKING DAY. AND I WANT TO GET FAT. AND I WANT TO HAVE SORES ALL OVER MY BODY BECAUSE IT IS OH SO ATTRACTIVE WHEN I WEAR SLEEVELESS SHIRTS. OH AND I FORGOT ABOUT THE THRUSH.

can't you just come and see my doc in champaign???
I'm sorry to hear this unrouley!! dang.. wanting attention?? tell him to feel this pain and YOU will say the same thing to him!! Dear God, if my husband would ever say this, he would be back with his mother!! I'm really sorry your DH(Darn husband) is lacking knowledge on RSD. we love ya hun!! Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Riddle Braindrain On the Lighter Side 1 09-27-2006 11:27 AM


All times are GMT -5. The time now is 04:21 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.