Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-21-2014, 05:04 AM #1
Kevscar
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Kevscar
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Default Westminster CRPS Brieifing

My MP Iain Stewart is arranging for me to brief MP's at Westminster in January he is also trying to get as many press as possible there, If you want nationwide awareness please contact your MP and try to get them to attend. Come along yourselves and give your story and opinion. Tell them if you think they should be pushing for these 7 steps or what you think needs to be done.
1 Changes to NHS Choices pages so they are accurate and show the 3 treatments which must never be used
2 An e-mail to every Trust Hospital Clinic Surgery and Dentist telling them about CRPS and the 3 treatments which must never be used
3 Teaching CRPS in every medical school
4 Debate in the full house PM and Sec State for health to meet sufferers then press conference
5 Office to collect collate and disseminate papers from around the world.
6 4% of any NHS underspend to be devoted to CRPS in 2012 that would have been 36 mill they spent 200,000 Cancer got 5,81 billion
7 to use me as a guinea pig for a possible cure
If you want full details of the steps or documents to send to your MP then e-mail me at RSDFighter@hotmail.co.uk
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birchlake (12-24-2014), catra121 (12-21-2014), Jamiemarie23 (12-26-2014), Jimking (12-24-2014), shelbie4u (12-21-2014)

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