Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-13-2015, 08:10 PM #1
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SloRian SloRian is offline
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SloRian SloRian is offline
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Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
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Hi NurseKris,

Since you asked, a non-traditional treatment (and non-invasive, too) is Calmare. We had great results with my daughter's RSD (and also me with fibromyalgia). There are threads here on it - in fact, I'm going to add my update right after this post here. It's not covered by most insurances yet, but I wrote a 3-page letter to my insurance company, explaining how it's a lot cheaper than the SCS we were going to get implanted, plus years and years of drugs, and they actually decided to cover it. Unfortunately, we then changed insurances! so I have to start the appeal process again.

Anyway, IMO it's worth a try. Be sure to get a dr. that's gone thru the training - not just one that has the machine. We've gone to 4 dr.'s now, and IMO the guy in NJ is the best by FAR. And most dr.'s will now not charge you for the first treatment if it doesn't show the signs of working, so all you lose is time.

Anyway, just FYI :-) and I hope you find some good treatments that work for you!


EDIT - another thing that's just darn fun and can get your mind off the pain (I'm having a rough pain day today) - someone showed me this great link where they have a webcam to a bald eagle nest. Bald Eagles mate for life and use the same nest, and it is just the coolest thing to watch them sit on the eggs, then take care of the tiny little eaglets, then watch the eaglets grow so fast, and then fledge and fly away. It's here - hope you like it! The first egg showed up last week, I think, then the second a few days later. They should hatch pretty soon.

Last edited by SloRian; 01-13-2015 at 08:13 PM. Reason: add a fun link
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