Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-09-2015, 03:24 PM #11
kcbarton70 kcbarton70 is offline
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kcbarton70 kcbarton70 is offline
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Unhappy Hi...I am scared and newly diagnosed...sort of.

Hi everyone.
My name is Kim and I am an RN who sustained a crush injury in October.
Since then, my life has been turned upside down! I am seeing a neurologist who "suspects" hat I have RSD and has told me to "read up on in" while not officially diagnosing me. I am in pain every day with burning and electric shocks in my left hand. I am scared that I am becoming dependant on Norco by can't function without it. I am also taking Mobic and Neurontin. I had 1 satellite ganglion nerve block that was unsuccessful. Recently I have started having twice chez in my extremities. My neurologist has not seen me since the block in middle November and now says I need a second opinion which is scheduled for Monday. I am confused, depressed, hurting and scared. I would love some insight from you guys. Specifically what medications you guys are using to function and if you are capable of working?
Sorry about the rambling post.
Kim
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Old 01-09-2015, 03:51 PM #12
kcbarton70 kcbarton70 is offline
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I have recently been told I am exhibiting RSD symptoms but have been referred for a second opinion when my 1 and only nerve block did not work. Everything that I have been reading says early dx is key! I am in limbo and not seen my doctor for 2 months after sustaining injury in October. I am so frustrated!







Quote:
Originally Posted by NurseKris View Post
I, like many of you, visited with relatives the past few days and the topic of CRPS came up. I have a large family and between all of us we have 3 nurses, a pharmacist, a physician assistant, and a med student. We had a very interesting conversation with some agreement and some disagreement.

One of the topics we debated centered on diagnosing CRPS. Because it is so important to start treatment as early as possible are some doctors forced to make a premature diagnosis? Are they trying to rule out or confirm? I was under the impression that the only way to “diagnose” CRPS was to rule out all other conditions. So do you start treatment before you are able to make a firm diagnosis? Or are doctors too quick to write a prescription without looking into other causes of the symptoms?

We have all been told the CRPS is not as rare as once believed. Is this because people are becoming more aware or because not everyone is using the same criteria? Many of us saw several doctors in a variety of specialties before receiving our final diagnosis. However, is one specialty better qualified to make the diagnosis than others? I was very fortunate that my doctors remained in constant contact with each other before deciding on CRPS. My personal opinion is that CRPS requires a multidisciplinary approach. Many times in hospitals they have “teams” for certain condition. One common team is the “stroke team” which consists of neurology, cardiovascular, physical therapy and others.

Sorry for such a long post. I just really wanted to know what others who share in this living hell think about this.
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