Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-01-2015, 11:40 AM #1
ksa898 ksa898 is offline
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Join Date: Jan 2015
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8 yr Member
ksa898 ksa898 is offline
Newly Joined
 
Join Date: Jan 2015
Posts: 1
8 yr Member
Default My Story-Am I Crazy?

So back in August I fractured the side of my left foot at work. The bone healed but still severe pain was persisting at the end of September. MRI was taken which showed edema around the injured bone. Ortho said I probably had some bone bruising and started me on Physical Therapy. Around this time the foot gradually began to have pins and needles, first in the toes and by mid october it was the entire foot along with severe pain. At night I began to have shooting pains of electricity going up my shin. Ortho prescribed gabapentin, it gave me vertigo so it was discontinued. I was given topical NSAIDs, which helped with pain but pins and needles continued at a constant rate.

November the ball of my foot and the original injury site began to hurt again. Ortho gave me Elavil which was ineffective. An EMG was ordered but this showed nothing. The neurologist suggested I go see a podiatrist. The podiatrist found that I had decreased sensation in my foot compared to my good foot, and while examining me my foot turned white and cold along with a slowed capillary refill. He said I had CRPS and would send a message to Ortho to send me to pain management.

I had to wait another few weeks before seeing Ortho again, and in that time frame symptoms escalated. My foot was constantly cold later in the day along with painful stiff joints. Pins and needles turned into stabbing pain. When I went back to Ortho they said nothing was wrong with my foot and I should wait it out. They said my symptoms shouldn't be intermittent and they should have a constant visible presentation. They said my MRI which showed no bone changes supports that I dont have CRPS, but the MRI was taken very early.

I talked to my PCP and she gave me the referral for pain management. While waiting for that my foot went from cold sensation to burning. It always seems fine in the morning but as the day progresses I develop painful patches of red. My knees turn red/purple. Every joint from my knee down hurts. Pins and Needles are intermittent but sharp. At night my ankle swells and looks thick.

Pain managment, whom I saw in the morning, said they could not diagnose me because they could not see my symptoms. I brought pictures of the symptoms but they said they couldnt count those. But in case they started me on 25mg of Lyrica. I asked for something to help me sleep, as I hadn't slept more then 2-3 hours the past month and some nights I dont sleep at all from the pain. They said to give lyrica 3 weeks to kick in. Its been 3 weeks and my next appointment is in 2 weeks.

I'm in constant agony and feel like a monster is living inside of me and causes chaos starting in the later afternoon. I still don't sleep, my driving is becoming dangerous. I call every other day to report increases in my symptoms, I just keep being told to let the lyrica work and that it sould make me sleepy, which it doesnt. yesterday I could barely get my shoes on with the swelling and the night before my foot was light purple. Now my right leg/foot is starting to hurt and bruise. I feel like I am crazy the way they talk to me. My pain, insomnia, and quality of life seems to be insignificant to them and treat me like I am only after narcotics. This morning I have painful red patches that can't stand to be touched. Tomorrow they might still be there or they may not.

I don't have permanent visible symptoms yet and I'm worried that if my treatment stays this conservative that they will appear and I will be worse off. Does anyone experience something similar with thier symptoms not always being present? I am considering the day of my appointment to go to the gym beforehand and move as much as possible so maybe I can evoke the weird symptoms for the Dr.
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