Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-17-2015, 05:41 PM #1
ChefCathleen ChefCathleen is offline
New Member
 
Join Date: Jan 2015
Location: Northern California
Posts: 3
8 yr Member
ChefCathleen ChefCathleen is offline
New Member
 
Join Date: Jan 2015
Location: Northern California
Posts: 3
8 yr Member
Default CRPS Support

Quote:
Originally Posted by tammy jo View Post
Hi. i haven't posted before, but ive reading your posts for awhile now. ive found this site to be very helpful and informative.

Ive had cprs for 5 years in march 2015, although i wasnt diagnosed until approx. jan. 2014. its in both of my hands and arms with my left side being the worse. I now fear it has spread to my left hip and ankles. My doctor doesnt feel that it could be cprs in my hip because i have not had a nerve injury there ?

I have actually learned more from this site than anywhere. The medical professionals in my area arent well informed and that leaves me lost.

I feel very alone with this condition. No one seems to know anything about it including medical, friends and family.I dont feel as alone knowing there are others that can identify with me. although i hate meeting you this way, since we are all suffering, but im glad i did.


now in addition to cprs type 2 i have atrophy, high blood pressure, severe depression, anxiety and fear it is spreading.

Any communication would be deeply appreciated.

Best of luck to you all.
Take care of yourselves
Hey Tammi Jo,

I too have CRPS and have definitely felt alone, and have isolated. I ran into another baseball mom here in my town and she asked me about my injured hand that I had when our kids played ball together a few years before. I explained that I was the proud owner of CRPS and began explaining it to her when she interrupted me and told me her daughter had the same. We've remained close and fast forward are working to bring awareness of this disease to the world. Jennifer spoke with the editor of a small town newspaper about it and he ran a story about it on the front page. I live in a town of maybe 50K people. The people who have CRPS are coming out of the woodwork!

Please don't give up! There are so so many support groups out there for you.

Be well!
ChefCathleen is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
allentgamer (01-21-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What type of CRPS are you - I or II? peppermintpatty Reflex Sympathetic Dystrophy (RSD and CRPS) 20 11-04-2011 02:06 PM
Suffering from CRPS type II numillionare New Member Introductions 7 10-23-2011 08:52 PM
CRPS type 2 and scs? sukadog Reflex Sympathetic Dystrophy (RSD and CRPS) 4 02-13-2010 07:45 AM
what type of doc follows you for crps/rsd? fewdalord Reflex Sympathetic Dystrophy (RSD and CRPS) 14 04-23-2009 12:02 PM
VP CRPS Type II GreyHoundLover Reflex Sympathetic Dystrophy (RSD and CRPS) 5 11-10-2007 02:36 PM


All times are GMT -5. The time now is 05:54 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.