Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-25-2018, 06:30 AM #31
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Quote:
Originally Posted by Imahotep View Post
I'd give up my hand in a moment for relief.

I've been warned that amputation usually makes it worse and no surgeon will touch it. For a long time doing it myself was "plan B". Sometimes it is completely successful so it always seemed to be an option.

I'm pleased it worked for you and you seem to have had a very successful surgery.
I personally don't think I could. I went through all stages (almost 3 years before diagnosis & treatment) and am in excruciating pain were it not for the medication. During those 3 years I didn't get anything for pain relief.

My "pain plan" was only established 2004. And I have this since 1995! So you can imagine. At the time it was also far more important to treat and see what possibly still could be done (nothing unfortunately).

I never *ever* thought of amputation. Yes, I wanted to get rid of the pain, but... never my limbs. Odd how that is different for everybody!

It is a controversial topic, IMMHO. Everyone does what's right for him / her, there is no right or wrong way to go about this.

We are all so different!

Good luck to OP!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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