Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-10-2015, 08:57 PM #1
LIT LOVE LIT LOVE is offline
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LIT LOVE LIT LOVE is offline
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There are maybe a few RSD/CRPS specialists in the entire country I would consider listening to with such extreme advice as amputation. If you do have RSD/CRPS the issue is dysfunction of your Central Nervous System.

The advise in the past has always been that amputation is only an option if there is gangrene and no other option. Someone posted a link recently that there was a study that amputation might be a viable option, but there are a whole host of other things I would insist on before ever considering amputation--and there was a point early on when I used to fantasize and dream about amputation as a way to have a normal life again.

And please understand when you are in as bad as shape as you are, it is VERY easy to overlook spread or mirroring to other areas, especially when you factor in opiates that mask lower levels of pain.

Why not insist on an inpatient course of Ketamine? I would even consider a spinal cord stimulator trial long, long before considering amputation!

When you say SGB didn't work, what does this mean? No pain relief? Temp pain relief? Did your eye droop and did your throat get sore?

Have you attempted pt in warm water? If you're unable to move it or use it, it will only get worse. If you can only move it for a few minutes under water, that's a start!
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Old 01-10-2015, 09:25 PM #2
swampcricket swampcricket is offline
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Quote:
Originally Posted by LIT LOVE View Post
There are maybe a few RSD/CRPS specialists in the entire country I would consider listening to with such extreme advice as amputation. If you do have RSD/CRPS the issue is dysfunction of your Central Nervous System.

The advise in the past has always been that amputation is only an option if there is gangrene and no other option. Someone posted a link recently that there was a study that amputation might be a viable option, but there are a whole host of other things I would insist on before ever considering amputation--and there was a point early on when I used to fantasize and dream about amputation as a way to have a normal life again.

And please understand when you are in as bad as shape as you are, it is VERY easy to overlook spread or mirroring to other areas, especially when you factor in opiates that mask lower levels of pain.

Why not insist on an inpatient course of Ketamine? I would even consider a spinal cord stimulator trial long, long before considering amputation!

When you say SGB didn't work, what does this mean? No pain relief? Temp pain relief? Did your eye droop and did your throat get sore?

Have you attempted pt in warm water? If you're unable to move it or use it, it will only get worse. If you can only move it for a few minutes under water, that's a start!
Blocks had no effect eye did droop and trouble speaking afterward no pain relief.pt with ground up corn cobs and hot air just made things twice as bad .i have been to three pain specialist and they all agree that amputation is the way to go. They want to do a spine stimulator but if I get this I can't ever work as a firefighter again because bwc won't pay to have it repaired if it gets knocked off. I have 6 years to go to retirement. Surgeon says he has done 4 people with CRPS and all have recovered well and no symptoms after amputation . Just wandering if there is any other treatments to try before the amputation. They say I have type 2 but mine is not the hot I have cold crps hand turns purple and cold. It hurts to walk any air movement. I just believe I should take the chance and see I know this sounds bad but its a chance
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