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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-14-2018, 08:03 PM | #1 | |||
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Was this surgeon a specialist in RSD/CRPS, and these a some new techniques to head off any issues going forward? If you would like to, please make a new thread and tell more about this for members reading and for future members... If this is is some new treatment option that hasn't been posted about here yet, we'd like to have the information available..
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06-17-2018, 05:00 AM | #2 | |||
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I do still think amputation is a long shot, my personal 2cts, but some techniques differ from others and OP is the living example of something gone *right*.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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07-19-2018, 09:32 PM | #3 | ||
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I'd give up my hand in a moment for relief.
I've been warned that amputation usually makes it worse and no surgeon will touch it. For a long time doing it myself was "plan B". Sometimes it is completely successful so it always seemed to be an option. I'm pleased it worked for you and you seem to have had a very successful surgery. |
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07-25-2018, 06:30 AM | #4 | |||
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My "pain plan" was only established 2004. And I have this since 1995! So you can imagine. At the time it was also far more important to treat and see what possibly still could be done (nothing unfortunately). I never *ever* thought of amputation. Yes, I wanted to get rid of the pain, but... never my limbs. Odd how that is different for everybody! It is a controversial topic, IMMHO. Everyone does what's right for him / her, there is no right or wrong way to go about this. We are all so different! Good luck to OP!
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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