[lovefamilypets]

IMPORTANT: CRPS Clinical Trial with the drug Neridronic Acid (AKA Neridronate) is being offered in different clinical sites around the US! This is a nationwide Phase III Clinical Trial for CRPS patients with one of the clinical sites being located in Sacramento at the Northern California Research Center <https://www.northerncaliforniaresearch.com/>
If interested in the Sacramento clinical site contact Iliana Rodriguez at 916-484-0500, she is the clinical trial coordinator.

I got the information for the clinical site in Sacramento by contacting the sponsor of the clinical trial, Grunenthal. Their website is <https://www.grunenthal.us/grt-web/231100010.jsp>. I just went to the contact page and filled out why I was contacting them for the Neridronate and CRPS trial, and they emailed me back. If that doesn't work you could always try contacting the Sacramento clinical site to see if they have a list of other participating doctors.

This is the same medication that is now approved in Italy, China, Taiwan, Hong Kong and Macau for CRPS.

Here is the link for the clinical trial with Neridronate for CRPS that was done in Italy: <http://rheumatology.oxfordjournals.org/content/52/3/534.full.pdf+html?hc_location=ufi>

Here is the link for a press release about the drug being offered for CRPS in other countries: <http://www.prnewswire.co.uk/news-releases/abiogen-pharma-signed-an-agreement-with-lees-pharma-for-license-distribution-and-supply-agreement-to-market-neridronic-acid-in-china-taiwan-hong-kong-and-macau-260641611.html?hc_location=ufi>

[Enna70]

Thanks so much for this....I went to RSD hope and they have good things to say about this 'medication'.....

[Russell]

Many thanks for the info. I will disgust this with mi neurologist...

[lovefamilypets]

American RSD Hope was how I originally heard about this med then I just had to do the waiting game to see when the trial would start. Here is the link for the discussion about it on RSD Hope: http://www.rsdhope.org/neridronate--...for-crps1.html

Also, I forgot to mention the clinical trial is for patients with CRPS Type 1.

[cdwall]

Too bad I've already had bisphosphonate infusions so I'm excluded.

[Jerie]

I was dumped by my pc in the er for what 'I did to my PC" which was nothing. I can't do the study because they said I asked for a ketamine drip, which is a lie. It's all about a female exam inappropriate. Now I will never have PM or PC for RSD. I am an official Drug seeker. I just want to die. after 4 tears of bs and fighting for everything with drs and insurers. I am ruined. I was going to do the clinic but I am ruined. So I drank after 20 years of sobriety and bought pot in Colorado and got wasted. over ketamine vs opiates.
I am so suicidal. God if I only had MS or something else with no pain. I just want to disappear and forget I was born. I use to believe God loved me. I don't anymore. I think he hates me wants me to burn in this life and the next. I know I made it worse drinking. I just don't care anymore. No loving God would let you suffer this disease. Just let me die. But I will burn forever not just now. This sucks. The funny thing is this is the best I have felt in 4 years physically and the worst spiritually and emotionally. I am disillusioned with drs.

[Lara]

Dear Jerie,

I'm very sorry that you're in so much pain right now and in such a terrible situation regarding your treatments.

I just wanted to mention to you that we have an SOS forum here if if ever need to vent and talk about how you're feeling.

Survivors of Suicide Forum

Call someone, a friend or a relative that you are close with to come to you so that you're not alone while you're feeling so badly.
Please call a hotline number if you are feeling suicidal or call your doctor or your therapist if you have one. Call 911 if you feel you can't deal with this anymore.

If you are in the US, call National Suicide Prevention Lifeline
1-800-273-8255
to speak to a trained counselor. Use that same number and press 1 to reach the Veterans Crisis Line.

http://www.metanoia.org/suicide/

[Jomar]

Some members have gotten help from contacting their senators or representatives - can't hurt to try. Especially after the shake ups in the VA - have to let them know that it isn't fixed yet..

[ofridagan]

This sounds very interesting.
Does anyone know how is the treatment is going to be like with Neridronic Acid?
Is it going to be infusion? pill?
What is the trial going to include?

[Jerie]

Been there done that. My congressman was involved and then the VA scandal broke out nationally and he sacrificed me for no bad news for Nebraska VA. Believe me they are all dirty. I feel better now. I wrote the study people and told them what I did and the doctor said it's ok, it probably won't exclude me and the study doctor will see me for PM and won't rule out ketamine, so I'll try again. I get so EMO over every roadblock I encounter and I am tired of chasing treatment all over the map. I dumped the VA a long time ago, but not before they did me a lot of local damage.