Hi everyone,

I just wanted to let all of you know that I am thinking of you and thought I would update you some.

I am moved into my new place but still have that storage unit to start on. Susan is going to help me do it this month so I can get rid of that bill. Even if I could afford it, I always think of storage units of being built to store the money they charge for them. LOL

As for the Vegal Nerve Stimulator, it is not doing it's job but I was told up to six months, even as long as a year. We have only turned it up once and plan on turning it up Friday. I have been putting it off due to the side effects I am having from it. One thing I wasn't told about it was all of the side effects. I have no doubt that they purposely don't tell people about them. I get a Newsletter every month on it and one of the side effects listed in this months was breathing problems. That's why I'm up tonight, I couldn't get to sleep for the breathing problems. Shortness of breath. This just started about a month ago. I am still determined to give it a shot anyway. I will let my Dr. turn it up on Friday but he said he'd be on call if I need him to turn it back down. Don't know Friends....

I am still having such bad days with my IC and other pelvic problems. I lost 3 lbs in 2 days last week due to my worst days. I go through them pretty often. I have tried 3 times to go off of my Methadone and that's what sends me into a tailspin. My Dr. gave me some TPI's and they helped some but not enough to go off of the Methadone like I want to. We are going to do a few more of them in the next month.

As far as my CFS, he gave me a script for Ridelin but so far my Insurance turned it down. I start fighting them this week for it. I can't wait to see if it will help the CFS. I have a friend on it and she says it works.

My kids are doing fine. Dustin and Devin both made the honor roll .Their team took first place in their Soccer division. They won 9 games out of 10. Devin also won a certificate for Best Comedian, Best Athelete, and Best Artist in the 6th grade. The whole time I was at their graduation and last day events though, all I did was think of Bill. Losing him is still unbelieveable painful. The 2nd was his birthday so that was very hard.

As far as the RSD, the crazy weather here in Co. has made it show up several times in my worst places. I do manage to get it under some control though with my Methadone. My saving grace is God, my Dr. and my Methadone and of course my family and all of you. I can come here to get the help and support I need.

I'm sorry I haven't been on here but I am still feeling overwhelmed with all I am going through. Losing Bill has really sat me back with everything.

At this point, I am just not doing good enough to stay on here but I did want to say hi to everyone and let them know about the VNS.

I have came on and read a little here and there but as I said, my depression isn't letting me do anything except what I must get done and that's with the help of my kids and Grandkids. My ex-son-in-law and my beloved friends I have here have been very helpful. Unfortunetly what I am going through just takes me to get me through it mentally. I am definately not in a good place right now. This is the 3rd time I have had to go off of here in the years I have been on here due to the depression and health.

I see my heart Dr. on the 22nd. We are also trying to find a Dr. to see what is going on in my right side and will deal with it.

I know a lot of you are worse off then I am and I am praying for all of you to start seeing some good days with the pain. Some of you have such hard times due to not having good medical help and I just wish you all could find that. With RSD though it seems impossible to find that even in the best of Drs.

I won't name all of you guys off because there are so many of you that have been good friends to me through all of this but all of you are special in your own way.

I know this is long but I still don't think I have Jose beat. LOL. I think I could give her a run for her money at times though. LOL

Have a good day and thanks for all of the support and love.

Ada

Hello Ada,I am fairly new here. Just want to say, I am so sorry for the loss of your Bill(that is my husbands name) You seem like a special Lady to be thinking of others, and still going through your depression and your loss, and all of your other problems too, Ada. I will keep you in my prayers. I thank God for this board and for "special folks" like you Dear one. hugs and I do hope you get to feeling better, Ada. Love, Desi

ada~~ my heart is there with you~~ missing the ones we love,the others who gave us such a strong reason to continue to fight the depression,pain..i am having more downs than ups myself-trying the hardest i can-but find myself spinning and neasious(?)
i am really trying to just take each moment at a time and deal with it..stopped taking alot of my meds.( they weren't helping) now take them as needed..trying to numb my head,while still being able to handle all the responsibilities..not an easy task-as i am sure you know-i still cannot see or feel the joy of my memories--only the lonliness and saddness that there will be no more(some say i am being self-fish)
we need to stay as strong as we can..and with the help of the fantastic people here--i get through it day by day--not even having me vent but by reading what others write to each other--
we all need a break---and not another body part--
stay in touch as often as you can--there are many friends here who understand just where you are..makes me feel not so alone--and you have helped by adding yourself to the list of friends i have found here...
sendidng you loving thoughts--linda (moonstar)

Hi Ada,

I was wondering how you are, thank you for coming on and letting us know. I can understand that you must feel disappointed that the VNS hasn't started working yet, not to mention those side-effects. I suppose, like most things, give it time...

You are very lucky in one respect, having such a caring daughter; she sounds really special, not to mention your grandsons. Don't attack the storage stuff too vigorously, just take your time about it; you know what these things are like, they hang over us like a black cloud, then you finally do them, and feel a bit better. (I should take my own advice there, got a mountain of things that need sorting, oh well, one of these days, lol!)

You will miss Bill, always. But it does take time too, quite a lot; you're doing exactly the right things though, looking after yourself, sorting things out and keeping busy. But I'm sorry you're still in so much pain, I really hope you start to feel better soon, and that these side-effects calm down. They do usually, though make sure you check out anything that alarms you.

Take care, Ada, it's very good to hear from you,
all the best.

Ada- It's nice to hear from you, I sure hope all the health problems will turn around soon.

For everyone else too!

Good to see you!!

Love ya much!!!

Hello Ada,

I often think of you and wonder how things are going. Thanks for giving us an update. Many of us understand that at times you just don't have enough strength to post as often as you would like to.

Rest assured that you are thought of and cared for! There is a better day for you somewhere down the road, hopefully real soon. Count on it!

Be blessed,

EJ

I am taking a break today and trying to get some rest. I know I am overdoing it because my CFS has gotten so much worse. I just woke up this morning and knew I had to slow down.

I have been going nonstop since I got moved. I have been putting things away and getting rid of things I don't want or can't keep here. It's been hard.
Luckily I have been able to turn a lot of my antiques over to some stores here to sell for me so that will help me with my income.

I do love my new place. I am right in town and I take walks everyday. I love this town. I honestly have to say that the town I live in is the friendliest town I have ever lived in or been to.

The weather here has been rainy every evening for 2 months which is unusual for here. It's still very dry though. I brought some of Bill's flowers over yesterday from my other place and planted them. They are so beautiful. He loved our flowers as much as I did.

I will try and come back on again more often. I do read some but it's hard. Monday night I fell asleep in this chair and must have slept for 10 minutes. I am always afraid I will fall when I am doing that and end up hurt more then I am.

Thanks again for the support.

Ada