Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-25-2015, 10:00 AM #11
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Hi Niki,
Welcome to the family!
I have a niece with your name. Spells it the same way too.
Be careful. A lot of physical therapist think they know about our condition but really don't. Lucky for me mine did. In fact he was the one to see my symptoms first and suggested the neurologist I'm still seeing.
My Ibiza is a 60 lb. blue merle collie who loves to play even now being 9 yrs.
I know she misses playtimes but I also feel that she understands when I'm not up to it.
Some days are better than others. Next week I'm going for a checkup and another increase of meds.
Stay in touch and hope you find relief...
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Old 01-25-2015, 12:27 PM #12
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Quote:
Originally Posted by Russell View Post
Hi Niki,
Welcome to the family!
I have a niece with your name. Spells it the same way too.
Be careful. A lot of physical therapist think they know about our condition but really don't. Lucky for me mine did. In fact he was the one to see my symptoms first and suggested the neurologist I'm still seeing.
My Ibiza is a 60 lb. blue merle collie who loves to play even now being 9 yrs.
I know she misses playtimes but I also feel that she understands when I'm not up to it.
Some days are better than others. Next week I'm going for a checkup and another increase of meds.
Stay in touch and hope you find relief...
Hello again Russ
I have never met someone that spells Niki like me! tell her hello!

I just moved to Wisconsin from Minnesota so I'm Trying to switch all my doctors over and I'm not having the greatest of luck to be honest! Everyone wants a referral. It isn't my Isurance either... It's the doctors. Go figure! I went to a neurologist... Explained my situation when I called made myself very clear what I needed... I get there.. they get comes in and says what do you want me to do? All I can help you with is your migraines! Ugh! So square one again! People here don't use a neurologist line I'm use to... They use a pain doctor! I've had bad luck with pain doctors! But what am I to do?!?! Oh boy! Who is the one venting now?!?!

I apologize!!!

I really hope your having a good weekend Russ!!!

Niki
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Russell (01-25-2015)
Old 01-25-2015, 01:55 PM #13
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Welcome Niki0313.
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"It is what it is."
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Old 01-25-2015, 02:01 PM #14
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Hi Niki,
Just letting you know that you never need to apologize.
Ugh! Sounds like you're having a pretty rough time of it. I wish I could help.
Did you contact your doc back in MN? I don't know much about the ins and outs of WI being down here in NC. Different states have different laws concerning insurance which I find sucks and hard to get used to.
I sure hope you get things straightened out...
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Old 01-25-2015, 03:55 PM #15
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hope you're feeling better today Russell. sending soft hugs and caring thoughts your way.
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Old 01-28-2015, 09:47 AM #16
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hope you're feeling better today Russell. sending soft hugs and caring thoughts your way.
Thanks Me,
Today is better so far. Going to see doc later. So far so good!
I love getting soft hugs...
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Old 01-28-2015, 10:32 PM #17
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Glad to hear you had a better day! Hope your visit went well too.

Take care,
Littlepaw
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Old 01-29-2015, 09:56 AM #18
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Glad to hear you had a better day! Hope your visit went well too.

Take care,
Littlepaw
Hi LP,
My visit didn't go as well as I would've liked. I found out that my cerebellum is still shrinking, loss of motor skills are getting worse and my speech is very bad.
But on the upside my meds were uped to help out with my CRPS flare ups.
Thanks a bunch for your concern. I hope your day goes very well.
Be well and safe...
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Old 01-29-2015, 04:47 PM #19
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[QUOTE=Russell;1120992]Hi LP,
My visit didn't go as well as I would've liked. I found out that my cerebellum is still shrinking, loss of motor skills are getting worse and my speech is very bad.


Poop! You still have your rugged good looks (avatar) and a big heart. So at least you have that goin' for you. I am having a stellar day finally. Started myofascial release last week, second session yesterday. Thanks to nortriptyline I can tolerate direct soft tissue work. It is not pleasant but I have a lot of dysfunctional scar tissue from my surgeries causing untold amounts of grief. Incisions are already a little softer and moving better. One of these days I'm gonna bust out of this joint...

Glad you're going to have less flare, that seems to help everything.
Sending hugs your way,
LP
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Old 01-29-2015, 07:28 PM #20
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Quote:
Originally Posted by Niki0313 View Post
Hello again Russ
I have never met someone that spells Niki like me! tell her hello!

I just moved to Wisconsin from Minnesota so I'm Trying to switch all my doctors over and I'm not having the greatest of luck to be honest! Everyone wants a referral. It isn't my Isurance either... It's the doctors. Go figure! I went to a neurologist... Explained my situation when I called made myself very clear what I needed... I get there.. they get comes in and says what do you want me to do? All I can help you with is your migraines! Ugh! So square one again! People here don't use a neurologist line I'm use to... They use a pain doctor! I've had bad luck with pain doctors! But what am I to do?!?! Oh boy! Who is the one venting now?!?!

I apologize!!!

I really hope your having a good weekend Russ!!!

Niki
Hi Niki, I'm new here too! Where in WI are you? I just moved to IL/WI border from TN, plus...my son say many excellent docs in Madison...anywhere near there??

Totally get the sorry furbaby, I can't play today...I was okay when I first woke up this morning (before getting out of bed) but as soon as I hit the floor, I knew it was going to be a bad day. Knee gave out as I was getting back in bed after a bathroom break...had to use crutches the rest of the day..argh
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