Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-25-2015, 10:00 AM #1
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Hi Niki,
Welcome to the family!
I have a niece with your name. Spells it the same way too.
Be careful. A lot of physical therapist think they know about our condition but really don't. Lucky for me mine did. In fact he was the one to see my symptoms first and suggested the neurologist I'm still seeing.
My Ibiza is a 60 lb. blue merle collie who loves to play even now being 9 yrs.
I know she misses playtimes but I also feel that she understands when I'm not up to it.
Some days are better than others. Next week I'm going for a checkup and another increase of meds.
Stay in touch and hope you find relief...
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Old 01-25-2015, 12:27 PM #2
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Quote:
Originally Posted by Russell View Post
Hi Niki,
Welcome to the family!
I have a niece with your name. Spells it the same way too.
Be careful. A lot of physical therapist think they know about our condition but really don't. Lucky for me mine did. In fact he was the one to see my symptoms first and suggested the neurologist I'm still seeing.
My Ibiza is a 60 lb. blue merle collie who loves to play even now being 9 yrs.
I know she misses playtimes but I also feel that she understands when I'm not up to it.
Some days are better than others. Next week I'm going for a checkup and another increase of meds.
Stay in touch and hope you find relief...
Hello again Russ
I have never met someone that spells Niki like me! tell her hello!

I just moved to Wisconsin from Minnesota so I'm Trying to switch all my doctors over and I'm not having the greatest of luck to be honest! Everyone wants a referral. It isn't my Isurance either... It's the doctors. Go figure! I went to a neurologist... Explained my situation when I called made myself very clear what I needed... I get there.. they get comes in and says what do you want me to do? All I can help you with is your migraines! Ugh! So square one again! People here don't use a neurologist line I'm use to... They use a pain doctor! I've had bad luck with pain doctors! But what am I to do?!?! Oh boy! Who is the one venting now?!?!

I apologize!!!

I really hope your having a good weekend Russ!!!

Niki
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Russell (01-25-2015)
Old 01-25-2015, 02:01 PM #3
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Hi Niki,
Just letting you know that you never need to apologize.
Ugh! Sounds like you're having a pretty rough time of it. I wish I could help.
Did you contact your doc back in MN? I don't know much about the ins and outs of WI being down here in NC. Different states have different laws concerning insurance which I find sucks and hard to get used to.
I sure hope you get things straightened out...
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Old 01-25-2015, 03:55 PM #4
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hope you're feeling better today Russell. sending soft hugs and caring thoughts your way.
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Russell (01-28-2015)
Old 01-29-2015, 07:28 PM #5
Always_Believe Always_Believe is offline
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Quote:
Originally Posted by Niki0313 View Post
Hello again Russ
I have never met someone that spells Niki like me! tell her hello!

I just moved to Wisconsin from Minnesota so I'm Trying to switch all my doctors over and I'm not having the greatest of luck to be honest! Everyone wants a referral. It isn't my Isurance either... It's the doctors. Go figure! I went to a neurologist... Explained my situation when I called made myself very clear what I needed... I get there.. they get comes in and says what do you want me to do? All I can help you with is your migraines! Ugh! So square one again! People here don't use a neurologist line I'm use to... They use a pain doctor! I've had bad luck with pain doctors! But what am I to do?!?! Oh boy! Who is the one venting now?!?!

I apologize!!!

I really hope your having a good weekend Russ!!!

Niki
Hi Niki, I'm new here too! Where in WI are you? I just moved to IL/WI border from TN, plus...my son say many excellent docs in Madison...anywhere near there??

Totally get the sorry furbaby, I can't play today...I was okay when I first woke up this morning (before getting out of bed) but as soon as I hit the floor, I knew it was going to be a bad day. Knee gave out as I was getting back in bed after a bathroom break...had to use crutches the rest of the day..argh
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Old 01-30-2015, 10:51 AM #6
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Hi LP,
I can't wait till tomorrow cause I get better looking every day....LOL
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Old 01-25-2015, 01:55 PM #7
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Welcome Niki0313.
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Old 02-03-2015, 08:22 PM #8
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Originally Posted by Russell View Post
I'M IN PAIN!
My pain level has been a 8 or 9 since earlier when I couldn't sleep.
Today's weather is going to be cold and rain maybe snow all day. My body can't handle this well.
I feel so bad for my dog because she wants to play which she enjoys. I wish she could understand but all she does is lay on her bed and pouts because I won't play.
Excuse my rant but I needed to...
I am lucky because I have three rescue cats that do what cats do best- nap. When I'm having a bad day which has been a lot lately they will lay near me or with me on the couch. Sorry you are going through a rough patch. Hugs from snowy Michigan.
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Old 02-06-2015, 11:52 AM #9
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(Didn't mean to hijack your post)
I'm sorry you are in pain. I am too with no pain management to help yet. I hope you med increase has been helpful....
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Old 02-07-2015, 10:48 AM #10
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Quote:
Originally Posted by Always_Believe View Post
(Didn't mean to hijack your post)
I'm sorry you are in pain. I am too with no pain management to help yet. I hope you med increase has been helpful....
So far so good!
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