Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-29-2015, 08:29 PM #1
hypersnack hypersnack is offline
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Default First post! Hi.

Greetings!

I'm glad this forum exists, because maaaan...

Two months ago I fell down two stairs. I thought I'd broken my big toe because it hurt, and it wouldn't move when I told it to. An x-ray said it wasn't broken. The doctor said, "Here's a non-flexible boot, you maybe tore a ligament, and it should feel better in a week or two." A few days later I went back to urgent care because my pinky toe was swollen, bruised, and painful. An x-ray said it wasn't broken. The doctor said, "Be patient, and here's some crutches."

Two weeks later I went to a not my primary GP because he had a sooner appointment. My foot hurt like hell, and if it was just sprained ligaments, something should be feeling better, right?? The doctor said, "Be more patient, use your crutches, and here's a painkiller Rx." I heard him say in the hall to probably my nurse, "She has a question about her ankle but I don't want to say anything since I haven't seen her before." What?!?

Three weeks later I ask for a referral to an Ortho. The doctor examines my foot and makes me cry. They take some x-rays, which say nothing is broken. He says "Be more patient, here's an aircast, and a different painkiller Rx since the other one doesn't work. Try to not to depend on the crutches too much. Come back in two weeks if it doesn't feel better." He offers an MRI, which turns out to say I have a swollen bone.

I already had an appointment with my primary GP, which I kept. He gave me a different painkiller Rx since the new one wasn't working, said be more patient, and start physical therapy. The physical therapist is amazed at how tender foot is, the inflammation level, and the poor range of motion. In the third visit the PT said, it seems like it's getting worse."

I go back to the same Ortho. He makes me cry again in the examination, diagnoses me with CRPS, gives me a nerve pain Rx, says keep up with the PT, and come back in three weeks.

Today I had a nervous breakdown because grocery shopping (much less the stairs to my third floor apartment) was exhausting and painful, I'm friggin' tired of being in pain, and my roommate made complaining type noises during and after me asking him to bring up my bags. My roommates sat there in silence watching and listening to me cry and put away my food. I get that they probably don't know how to deal, but come on.

I'm going to eat some ice cream now. Thank you for reading this.
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Old 01-30-2015, 10:42 AM #2
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Hi Hyper,
Welcome. Where you ever dx'ed with CPRS?
If you ever find out what's going on let us know.
Your roommates INHO are being crappy.
What kind of ice cream?
Be safe...
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Old 01-30-2015, 11:12 AM #3
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Originally Posted by Russell View Post
Hi Hyper,
Welcome. Where you ever dx'ed with CPRS?
If you ever find out what's going on let us know.
Your roommates INHO are being crappy.
What kind of ice cream?
Be safe...
Yeah, I was. It seems like nobody is actually really trying to treat the initial problem, and just the pain. Sure ligaments take some time and physical therapy to heal. However, everything I've read has said the foot is an incredibly complex thing, and one thing throws it all off. I damaged several parts. This wait and see bs because the x-ray said nothing is broken is driving me insane.

It was blueberries and cream, and delicious.
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Old 01-30-2015, 11:35 AM #4
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Hi there. New member here. I'm a 23 yr old, recently diagnosed with essential tremors. Had an upper limb tremor since i was 16. been progressively worsening since then. Currently on Metoprolol 50mg xr bd and Clonazepam 0.25mg od. Any suggestions on dealing with clonazepam associated drowsiness?
p.s. Can someone tell me how to make a new post? I have no clue how to do that hence i'm replying to another post. Thanks.
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Old 01-30-2015, 11:39 AM #5
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Originally Posted by neuronhunter View Post
Hi there. New member here. I'm a 23 yr old, recently diagnosed with essential tremors. Had an upper limb tremor since i was 16. been progressively worsening since then. Currently on Metoprolol 50mg xr bd and Clonazepam 0.25mg od. Any suggestions on dealing with clonazepam associated drowsiness?
p.s. Can someone tell me how to make a new post? I have no clue how to do that hence i'm replying to another post. Thanks.
Hi
You've mentioned essential tremor but have posted on our RSD/CRPS forum....here is the link to our Movement Disoders forum http://neurotalk.psychcentral.com/forum65.html

To start a NEW THREAD..... enter the Forum you wish to post to and look near the top and bottom left of the page where you will see the NEW THREAD button, click, type and submit

To post a reply to an existing thread in a forum, enter the thread and you will see the NEW REPLY button in the same areas (top and bottom left) Depending on the theme/skin you are using, it may say POST REPLY etc but they are always in that same location.

To reply to an existing thread by quoting the post you wish to reply to...use the QUOTE button at the bottom right of the post you are responding to.
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Old 01-31-2015, 05:41 AM #6
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Hey Hyper,
I am sorry to say this but if it's really CRPS that there isn't a known cure yet. Treating the pain is about all that can be done. My guess is that for some reason this is what your docs suspect but for some reason aren't discussing it. Remember that's just a guess.
Ask your docs point blank if they suspect CRPS...
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Old 01-31-2015, 09:33 AM #7
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Hypersnack,

So sorry you have to be here but we're glad to offer support. If you feel like something is really wrong in your foot mechanically (I did and I was right) maybe see about getting an overread on your MRI. I had extraordinarily different opinions on my MRI from two different radiologists. One didn't see a problem at all, the other identified a 50% tear missed by the other guy. The way this happened is the overread was done a radiologist with a lot of experience in the foot, he'd been an Army doc and saw a lot of foot issues so had gotten continuing ed for that anatomy. I actually went to another radiology operation in my town with the disk and paid about $150 to have him read it. I got a lot more info and it altered my treatment plan. If you call you can find out who their foot person is. Otherwise some of the centers send their stuff remotely to India, etc. no lie and you have no idea if that person has an interest in the foot.

I hope you get some relief soon. Sending Healing Love
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Old 02-05-2015, 05:00 PM #8
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Totally agree with Russell!! Ask point blank! If you need information then you have found a great site for it. Best of luck
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Old 02-05-2015, 06:59 PM #9
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Request a prescription for Lidocaine patches. Try soaking your foot in warm water with Epsom salts. You also might want to research high doses of Vitamin C in relation to CRPS.
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