Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-31-2015, 09:23 AM #8
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

Hello All, There are some great comments here. Thank you! All so true. I have a note on finding docs in general. I have been the lucky gal who always ends up in the 5% - who rupture, who need rare surgery, who grow a massive fibroma and need radiation for a condition commonly treated in Europe that way but not here. Yeah me for being special.

I have had to find a variety of experts to deal with outcomes that "don't usually happen". This means the guys who take care of the 5% and are up on the latest for weird conditions. I have solved this by doctor shopping. So tedious but worth it. I start by looking at a group of specialists' CV which are often on their webpage. I have leaned towards those who did fellowships at large academic centers I respect. They have had a better chance of seeing things at a tertiary referral center and competition to get a fellowhip is fierce. My surgeon trained at Stanford in microsurgery and peripheral nerve at Washington U in St. Louis at an excellent nerve program. The training gave me confidence and he DOES know what he's doing. More than I can say for some of the hacks I have encountered. Because he's on a lower exremity restoration team I ended up finding other docs I trust through him. I travel 3 hours to Medical City in Houston to see three different specialists. It is absolutely worth it. For me, even in a city as large as Austin we just don't have that kind of care, damned town's grown to fast....

Sending Healing Love
Littlepaw
Littlepaw is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What therapies would an expert on PD use? johnt Parkinson's Disease 0 04-20-2014 01:38 PM
expert opinion pls lined_in_silver Peripheral Neuropathy 0 07-30-2013 03:57 PM
MG expert in NYC? Needananswer Myasthenia Gravis 4 11-27-2012 12:06 AM
mrsD, I need your expert advice please... dllfo Vitamins, Nutrients, Herbs and Supplements 11 08-24-2009 08:42 PM


All times are GMT -5. The time now is 07:40 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.