I was diagnosed with RSD in 1994. From then to 1999 I was in the hospital for nerve blocks and numerous surgeries such as gall bladder taken out, fingers on right hand wired open and I have a urinary ostomy. My RSD is atypical and my Neurologist feels that is because I have a nerve disease that they can't figure out what it is. My mobility has went down hill quickly. I now have RSD though my whole body. It would be nice to be able to vent and ask questions about things I'm going though physically. I am pretty much homebound and I don't get much interaction with people in person or by phone. It would be nice to see if others have some issues I do and for me to share some things that help me and maybe would help others with the same things. I look forward to talking with others that understand what I'm going through.

You can also do a search of the RSD forum for "whole body" to find other posts mentioning that...

JPropst,

Welcome to the forum my friend! It is a great place to share and receive tips on meds, therapies, etc. that you may want to consider.

And of course, it is oftentimes simply a good place to vent.

We're all on this crazy ride together But it sure helps to know that there are others and that they care.

Keep us updated on your journey.

Welcome J!

I am glad you made your way here. It can be very challenging to deal with the circumstance of being homebound and mobility impaired. I spent many many months unable to get out due to surgeries and found out just how important my environment really was. Small obstacles could seem monumental and likewise the simplest of things could have a positive impact. It sounds silly but an orchid from the grocery store and an extra bird feeder made a difference psychologically at least for me. I hope the forum offers you a place of belonging so that you do not feel so isolated in what you are going through. You are not alone! Reach out when you need...

Sending Healing Love
Littlepaw