Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-10-2007, 08:28 PM #1
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Thumbs up Update on HopeLiveHere...

Hi Everyone,

I received an E-mail from Hope today and she said to tell everyone Hi and asked me to let all know that she is doing very well... She has had spinal headaches from the surgery but today she is feeling better..

Here is some of her E-mail that she asked me to let you all know about..
Other than that the surgery was a complete success so far. Anything over 50% of pain relief is a success so I'm a big success.
When I woke up from surgery almost all the burning was gone, the swelling was going away and the color changes were going away too. My shoulders are somewhat better but not completely. The burning is only slight in a few areas. I should have had this done years ago. My spine incisions are not painful but the abdominal incision where the pump is hurts a little. My binder helps with that.

She said to tell all Hi and Thanks Everyone for there thoughts and prayers...

Many Hugs
Dawn
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Old 06-10-2007, 09:24 PM #2
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Hey Dawan

Thanks for passing on the message, and tell Hope how pleased I am that it went OK and give her my best wishes for a speedy return to life, and the forum, we miss her,
all the best
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Old 06-10-2007, 09:24 PM #3
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Hi Dawn!
Thank you so very much for informing us of Hope's surgery. I am so very happy for her that she is getting such good relief from the morphine implant. well, again.. thanks for the up date! I was meaning to ask you, Dawn.. is that your dog?? if so.. I want him/ her Big Hugs Dawn.. Big hugs Hope Love, Desi hey, lady.. how are you doing these days?
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Old 06-12-2007, 10:46 PM #4
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Thanks for posting that for me Dawn.
I have my own miracle here. I had my post op visit yesterday. I had an eight day spinal headache, that is just lifting today.
The surgical sites are healing well. Now that the swelling is gone I can see how wasted away my arms and ankles are. Skin and bones. I will need some physical therapy to gain strength and stamina back, but that should be easy without all the skin, muscle and bone pain.

I'm not sure why doctors don't use these more often to stop the suffering. I had to wait 3 years for mine but I'm glad I've done this so far. No side effects from the neuroleptics and pain pills. I'm beginning to feel normal again and it has been a long 5 years since I've felt normal.
It will be interesting to see just how much I'll be able to do.
I'd love to go for a walk but it will be awhile yet before I can do that.

Time is still limited here, so I am signing off now.
I wish all a pain free night, Hope
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Old 06-13-2007, 04:34 AM #5
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Hope, it's wonderful to hear from you. I am sooo glad to hear everything went so fantastic... you sound bright and chipper and... ummm... HOPEful

Hearing stories like yours help the rest of us feel better, too.... thanks!
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Old 06-13-2007, 06:54 AM #6
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wow!.....wonderful news!!!!!!
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Old 06-13-2007, 09:31 AM #7
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Hi Hope,

This is one of the best bits of news we've had on the forum for a long time, you sound like a different person; when you get the time, no rush of course, you must recap on exactly what they've done. Glad the spinal headache is receding...you just sound so great!

I'm so pleased for you,

all the best!
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Old 06-13-2007, 05:20 PM #8
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Hey Hope,
Good to see you posting GF I am expecting that when we get together next winter that you will run circles around me... I am sooooooooooooooooooooooooooooo happy for you. I have never heard your voice sounding so relaxed since you & I met real time 3 yrs ago. Before your voice was always so strained with pain. I sure am hoping one day, for you to hear my voice as relaxed as yours does now. Maybe I should start talking to my doc about a pump. I only seem to have less than a half life cause most of it I am either asleep or wishing I were alseep *LOL* due to all the drugs I am on. Sometimes functioning is so hard to do. I have my 'spoons' all used up before noon it seems.

WOW!!! I truly tickled to death for you. I bet your hubby & Karen especially are excited :excited: I can't wait until you can get all your muscles built back up & you get out there & are able to start doing some of the things you use to be able to do. Major 's your way GF!!!

Always,
DebbyV
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