Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-05-2015, 02:00 PM #1
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Hi Minnie,

Welcome! I am sorry for your reason for being here. I hope the forum helps you find some answers and community. Very odd with your symptoms, sounds so much like a disc/nerve root issue for sure! I don't know that MRI or any imaging for that matter is ALWAYS the bomb. There is interpreter skill involved and non-florid radiographic findings don't stand out to every interpreter. If you see neuro or neurosurgery take a disk of your imaging with you. I would call and really stress the urgency and acute change. If there is nerve compression in your neck that can be an urgent situation and they should have work in appointments for such a case. Also you might consider trying to get in with a Physical Medicine & Rehabilitation doc if neuro can't see you. PMR should be familiar with nerve/musculoskeletal issues and may be able/willing to order a nerve conduction to see what is getting through your poor arm. If it's CRPS it's CRPS but any treatable cause has got to be ruled out.

Hang in there! Sending Healing Love , Littlepaw
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Old 02-06-2015, 08:49 AM #2
minniemilkx minniemilkx is offline
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Quote:
Originally Posted by Littlepaw View Post
Hi Minnie,

Welcome! I am sorry for your reason for being here. I hope the forum helps you find some answers and community. Very odd with your symptoms, sounds so much like a disc/nerve root issue for sure! I don't know that MRI or any imaging for that matter is ALWAYS the bomb. There is interpreter skill involved and non-florid radiographic findings don't stand out to every interpreter. If you see neuro or neurosurgery take a disk of your imaging with you. I would call and really stress the urgency and acute change. If there is nerve compression in your neck that can be an urgent situation and they should have work in appointments for such a case. Also you might consider trying to get in with a Physical Medicine & Rehabilitation doc if neuro can't see you. PMR should be familiar with nerve/musculoskeletal issues and may be able/willing to order a nerve conduction to see what is getting through your poor arm. If it's CRPS it's CRPS but any treatable cause has got to be ruled out.

Hang in there! Sending Healing Love , Littlepaw
Thanks Littlepaw,

I had all my blood work done today but Im still waiting to hear from neuro. My mum is taking me back to the doctor on monday. I really need to get this diagnosed, I haven't been able to go to university since it happened and Im going to Paris in March
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Old 02-06-2015, 10:25 AM #3
Kevscar
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According to The Budapest Criteria you need 3 of the 4 main symptoms

http://www.rsdhope.org/crps-symptoms.html
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Old 02-07-2015, 01:16 PM #4
HarryDresden HarryDresden is offline
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According to The Budapest Criteria you need 3 of the 4 main symptoms

http://www.rsdhope.org/crps-symptoms.html
I would suggest you should think of it like, more signs and symptoms increase the likelihood of the diagnosis being correct.
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