Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-11-2015, 08:09 PM #1
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Hi Spoonie,

Did you have much work up done? I am always harping about nerve entrapment because of personal experience and because it mimics and is sometimes confused with CRPS. I hate to think of people suffering over a nerve entrapment that can be treated. I get suspicious of stabbing, electrical pains as being nerve related in a different way than CRPS. So classic. The elbow area is a common site of entrapment or damage to the ulnar nerve. I can say with the authority of experience that the pain of entrapment can travel both up and down no matter what doctors tell you. I had pain shoot both ways. My father in law also went through a similar thing. Ulnar nerve actually! Compressed during a surgery. I always say new symptoms deserve a new look-see. We cannot sell ourselves short because of the diagnosis given to us. See about a nerve conduction test if you haven't had one or even if you have....Before you worry about spread make sure there's not something else going on. Case in point, I recently had buzzing going up my leg and was really scared symptoms were spreading past my foot and ankle. Turns out I was aggravating my saphenous nerve at the adductor canal of the thigh (a common site for this) riding the recumbent bike at the gym. I only figured this out after months of worry because I took ten days off my workout, had symptoms disappear then return when I went back to the gym. Doh! That problem totally resolved within 3 weeks of my not being such an idiot.
If nothing else is causing your symptoms then hit the Vit C and n-acetyl cysteine. Try not to panic, stress hormones won't help. Mirror therapy is good for addressing central sensitization which may be related to spread. Keep movin' if you can and hang in there!
Sending Healing Love, Littlepaw
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Old 02-11-2015, 08:48 PM #2
crpsspoonie12 crpsspoonie12 is offline
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Quote:
Originally Posted by Littlepaw View Post
Hi Spoonie,

Did you have much work up done? I am always harping about nerve entrapment because of personal experience and because it mimics and is sometimes confused with CRPS. I hate to think of people suffering over a nerve entrapment that can be treated. I get suspicious of stabbing, electrical pains as being nerve related in a different way than CRPS. So classic. The elbow area is a common site of entrapment or damage to the ulnar nerve. I can say with the authority of experience that the pain of entrapment can travel both up and down no matter what doctors tell you. I had pain shoot both ways. My father in law also went through a similar thing. Ulnar nerve actually! Compressed during a surgery. I always say new symptoms deserve a new look-see. We cannot sell ourselves short because of the diagnosis given to us. See about a nerve conduction test if you haven't had one or even if you have....Before you worry about spread make sure there's not something else going on. Case in point, I recently had buzzing going up my leg and was really scared symptoms were spreading past my foot and ankle. Turns out I was aggravating my saphenous nerve at the adductor canal of the thigh (a common site for this) riding the recumbent bike at the gym. I only figured this out after months of worry because I took ten days off my workout, had symptoms disappear then return when I went back to the gym. Doh! That problem totally resolved within 3 weeks of my not being such an idiot.
If nothing else is causing your symptoms then hit the Vit C and n-acetyl cysteine. Try not to panic, stress hormones won't help. Mirror therapy is good for addressing central sensitization which may be related to spread. Keep movin' if you can and hang in there!
Sending Healing Love, Littlepaw
Hey littlepaw,

I have some blood work done as well as x-rays and just yesterday had thermography imaging done. They said it looked like RSD. That is an interesting point though, I may look into that more. However, I did originally look into that type of thing and it didn't fit everything as I recall. With my pain, it will turn ice cold on my right arm and be normal on the left, it also has mottling of the skin as well as swelling. Also, it is very affected by my moods, meaning there are more flares when I'm upset, stressed, etc. Also, I have had burning pain before in my arm, especially when it is a very bad flare, it is just more commonly what I think of as an electric feeling. What do you mean by mirror therapy?
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Old 02-11-2015, 08:54 PM #3
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Originally Posted by crpsspoonie12 View Post
What do you mean by mirror therapy?
info- videos about it -
https://www.google.com/search?q=RSD+...herapy&tbm=vid
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"Thanks for this!" says:
birchlake (02-12-2015), crpsspoonie12 (02-11-2015)
Old 02-11-2015, 09:01 PM #4
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Thank you Jo*mar , I thought that that was what it was but that helped.
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Old 02-11-2015, 08:57 PM #5
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Littlepaw,

Yeah I just looked it up again and I never havehave any numbness in my arm. It's always pain. But thank you for telling me about that.
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