Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-13-2015, 10:00 PM #10
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
10 yr Member
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
10 yr Member
Default So sorry

I'm so sorry this might be spreading. I sort of hesitate to share my story as I don't want to increase your worry, but maybe it will help. I have had CRPS in my foot since July. In December it spread to my ankle. In January, it spread to my calf. Now, I'm showing early signs of it spreading into my knee. On February 2nd, I had a sympathetic nerve block. At that time, there was no sign of it in my knee. Just over a week after the block, the mottling is above my knee. I have had no new injuries. I was super hardcore about preventing spread. I'm on gabapentin and neurotonin, lots of supplements including vitamin C 1000 mg, and I tried multiple treatments including aggressive physical therapy, acupuncture, chiropractic, and therapy. Nothing has stopped the spread and no one knows why, including a leading expert in the field. I believe stress had caused spread in my case. On February 6th, I had an e extremely stressful day and the spread to my knee started after that. I have problems with meditation and I can't do many types of yoga right now, but I still highly recommend anything that reduces your stress. There are many types of yoga, so maybe try another like nidra yoga, hatha yoga, gentle yoga, or restorative yoga. Meditation doesn't have to be this transcendental thing - it can be just sitting and trying to focus on your breath, without changing it, even for 5 minutes. Starting in January, I have been trying to do these things and I see their potential, if I can just overcome my anxiety and do them. Maybe they aren't for you, but I strongly encourage you to find something. Maybe an anti-anxiety med. And I second an earlier post that medications like noritytripline are different than regular anti-depressants. They are many options, don't stop at the first one that doesn't work. Treatment is supposed to stop spread, so consider asking your doctors for more option . Gabapentin is a typical first step and I'd consider that before medical Marijuana which has less research. Research all the treatments on sites like RSDA or various books and decide what you are willing to try, then ask for that. Doctors don't always offer; we sometimes have to ask. I hope this isn't spreading for you and I hope you find relief soon.
maygin is offline   Reply With QuoteReply With Quote
 

Tags
crps, pain, rsd, scared, spreading


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
It's Spreading, Again ... Vrae Reflex Sympathetic Dystrophy (RSD and CRPS) 10 05-24-2013 01:19 AM
RSD spreading very fast. Having 2nd nerve block today, i am scared. Karen67 Reflex Sympathetic Dystrophy (RSD and CRPS) 25 10-04-2011 08:33 AM
Spreading justdeb Reflex Sympathetic Dystrophy (RSD and CRPS) 4 10-20-2009 04:51 PM
Scared spreading pain Steff Peripheral Neuropathy 10 09-02-2007 01:53 PM
How do I know if my RSD is spreading Bronco4586 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 04-24-2007 09:44 AM


All times are GMT -5. The time now is 04:06 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.