Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-18-2015, 01:41 PM #1
AliM AliM is offline
Junior Member
 
Join Date: Jul 2012
Posts: 21
10 yr Member
AliM AliM is offline
Junior Member
 
Join Date: Jul 2012
Posts: 21
10 yr Member
Default Has anyone used DermaTran cream for CRPS?

My pain management specialist recently prescribed a topical cream from DermaTran for the severe CRPS in the ball of my left foot. (I have been heel limping for 3 years now. Ugh.) But when I googled it, a lot of the reviews said they had rashes, etc. but that the specialty pharmacy was good about trying a different combo if you alerted them to the problem. But that still makes me wary. Does it work?? If it is a miracle worker, I'm willing to give it a go, even though the hassle of tweaking ingredients makes me anxious. I've had enough hassle in my life between the CRPS and now 2 forms of fast-progressing arthritis. (Sucks.)

Can anyone tell me if they've used it and what their experiences have been?
AliM is offline   Reply With QuoteReply With Quote

advertisement
Old 02-18-2015, 07:00 PM #2
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Hi Alim,
Sorry I can't be of any help. I just jumped in to say hi and welcome.
Also sorry for the reason for being here and I want to agree. CRPS does suck!...

__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (02-28-2015)
Old 02-18-2015, 07:08 PM #3
AliM AliM is offline
Junior Member
 
Join Date: Jul 2012
Posts: 21
10 yr Member
AliM AliM is offline
Junior Member
 
Join Date: Jul 2012
Posts: 21
10 yr Member
Default

Quote:
Originally Posted by Russell View Post
Hi Alim,
Sorry I can't be of any help. I just jumped in to say hi and welcome.
Also sorry for the reason for being here and I want to agree. CRPS does suck!...

Hi Russ! Thanks for the welcome! It's so fabulous to have a place to visit filled with people who "get it." Not many people do, even in my own family. It makes it tough. So thanks for letting me fit in here.
AliM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (02-25-2015), Russell (02-18-2015)
Old 02-18-2015, 09:23 PM #4
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Quote:
Originally Posted by AliM View Post
Hi Russ! Thanks for the welcome! It's so fabulous to have a place to visit filled with people who "get it." Not many people do, even in my own family. It makes it tough. So thanks for letting me fit in here.

I know what you mean. Here is friendship, understanding, help and info.
Just having a place to rant and be listened to helps.
Come and speak anytime...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (02-25-2015)
Old 02-19-2015, 09:15 AM #5
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

Hi and Welcome!

I have not used Dermatrans products specifically and am wondering what the "hook" is over any other compounding pharmacy. I found relief with one compounded topical around my surgical scar that had gabapentin and ketamine in it. Tried another with everything but the kitchen sink in it and didn't notice much. For what it's worth the one that was kind of sticky seemed to sit on the skin and not work as well. The helpful one was creamy and stayed creamy. Some products crystallize over time and then you can't rub it in. I think topicals definitely have a place but they are very dependent on the vehicle chosen, etc. I also found them to be fairly expensive. When I tried a new one I just had them make up the smallest amount possible so I wasn't overcommitted.

I don't know how helpful any of this might of been but it's all I got! I hope you find relief soon.
Sending Healing Love, Littlepaw.
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (02-19-2015)
Old 02-23-2015, 09:53 PM #6
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
Default

I haven't tried dermatran specifically because my insurance didn't cover that pharmacy, but I did get a similar compound cream from my local specialty pharmacy. I have a lot of pain in the ball of my foot (at first) and it helped a lot, but I mostly only use it on the bad days now, since there's nothing else I can take. I suggest having your doctor wrote a script for the cream you can take to your local specialty pharmacy and work with them. I had problems with the medication in the cream not dissolving (there were little chunks) and they made me a new one without me having to bring in the bad one. I live in a city and normally there's no customer service. A local place can work with you better than a national place. Just a thought. But there is no miracle cream. I can tell you that in the beginning, it was a life saver for me. Now, it helps on the bad days and thus is worth it for me.
maygin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (02-25-2015)
Old 02-26-2015, 03:41 AM #7
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default

I have. It only worked when I put it in the scar from the wound that caused the RSD. It seemed to calm down the burn in the entire leg. But it didnt work anywhere else on the leg.

My insurance wouldnt cover it, so I cant afford to keep using it. It sucks when you find something that helps and the insurance decides it wont pay for it.

RSD sucks, and so does insurance companies sometimes....
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New cream Vowel Lady Peripheral Neuropathy 0 11-24-2013 03:42 PM
I want some ice cream!!!!!! doydie The Stumble Inn 3 06-01-2011 09:00 PM
New topical cream malawigirl08 Peripheral Neuropathy 15 04-28-2011 04:25 PM
Cream for PN en bloc Peripheral Neuropathy 22 03-15-2011 09:49 AM


All times are GMT -5. The time now is 05:08 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.