Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-26-2015, 03:51 AM #1
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Default Had a scare

Man I had a scare a couple of weeks ago! I also think that they worsened the RSD with the treatment.

The scar I have where they took out the clot in the femoral artery developed an abscess. I didnt even feel it developing because it never registered any pain above the RSD pain. When I noticed it, it was already huge!

They put me on 3 antibiotics, but after a few days it wasnt getting any better. So they cut into it. It was so close to the femoral artery and nerves they were afraid to cut very much, but they were able to clean it out good.

Ever since they did that, it has been pain off the charts! They said it was pretty serious and I was lucky I came in when I did. I tell ya the flashbacks of laying around with a huge wound in my leg and groin came back like a nightmare!

So if you have a scar or scars where you were wounded and caused RSD. It is a good idea to inpsect the area every couple of days. Ya never know what might be developing if it doesnt break through the pain you already suffer from. They said it should have hurt like crazy......I told them it does! Just wasnt hurting enough to get past the RSD pain.
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Old 02-26-2015, 08:30 AM #2
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Hi Allen,
Glad to read you're okay.
I can relate to having a scare. I get those too.
Not speficately from a scar, but a scar all the same.
I agree about inspecting scared areas. My nuerologist is always telling me too keep an eye on mine. I have a 6" scar that runs down my forearm where a 4" plate was placed across my wrist that's been fused. It's never been infected yet, knock on wood.
Be well my friend...
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Old 02-26-2015, 08:42 AM #3
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Yikes! I'm glad you are on the mend. That could've been a real disaster. Treatment may have flared things but a completely blown out abcess would have been worse. This is a good reminder to do skin checks. Some of us have pain at incisions but others have areas of numbness....

Sending Healing Love, Littlepaw
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Old 02-26-2015, 12:38 PM #4
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Really thanks a lot for sharing this...because new pains get ignored as we try and deal with the growing monster of CRPS/RSD....
Ever since a recent two hour MRI my nerves are driving me over the edge and I have to ignore other pains just to cope....
Very happy to hear you caught it in time and bully for you to tell them IT DOES DARN HURT! Sorry, I am just so tired of everyone saying it shouldn't hurt; We are not idiots or seeking attention....it just HURTS!
Again glad you are Okay and thanks for your voice.
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Old 02-27-2015, 09:11 AM #5
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Oh my, would never think of rsd/crps hiding something that could potentially become so life threatening like this! Thank you for the insight, sorry you had to find out this way! Very scary!! Hope you are recovering quickly!!

Take care
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Old 02-27-2015, 01:33 PM #6
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Quote:
Originally Posted by scubaforsythe View Post
Oh my, would never think of rsd/crps hiding something that could potentially become so life threatening like this! Thank you for the insight, sorry you had to find out this way! Very scary!! Hope you are recovering quickly!!

Take care
Dawn
Ditto. Glad you are on the mend!!!
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Old 02-27-2015, 03:45 PM #7
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I went in for the doctor follow up yesterday. He said it looked like it is closing up ok......but! Dontcha just love the buts!

He is going to send me to a surgeon. Said that it looks like the scar tissue is impinging on the nerves and artery. He thinks it might be a good idea to have some of it cut away.

I feel kinda numb about the whole thing. This is where the RSD all started. April 1 st will be the 15 year anniversary to having my life pulled out from under me. I sure hope whatever happens next doesnt make things harder then it already is....

This the original photo that started the entire ordeal. Inside the circle is the blocked femoral artery. It was blocked for 7 days with no blood flowing to the right leg. The actual clot was some sort of closure device that they accidentally pushed into the artery.

I think the thing that is bothering me thee most.....I decide that RSD doesnt rule me, and I start getting out and doing my own thing, no matter how limited. In my pursuit to have some kind of life I get put on Finding Bigfoot, and Monsters and Mysteries in America. Start a web show on paranormal, and last week our local FOX affiliate orders 26 episodes!!

Now this stupid RSD and health issues raises it nasty little head and is trying to stop me. I will not let this stop me! Dang it!

Had a scare-469547_4247707151191_1967568958_o-jpg
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Old 02-27-2015, 05:59 PM #8
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Allen

don't settle for a general surgeon....you need a specialist comfortable with microsurgery. If there is a plastics group that does trauma, lower extremity reconstruction where you are then I would recommend consulting them. Positive outcomes can be achieved with this kind of surgery but they are best with someone who is going to be extra delicate and meticulous. It would be amazing if getting pressure off that nerve made your life easier.

Hoping for the best,
Littlepaw - 3.5 hour nerve repair, CRPS from something else...
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