Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-04-2015, 12:51 PM #11
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

Legin,

There may be other meds that might help. I couldn't tolerate neurontin either, made me depressed. I have done well on TCAs, low dose nortriptyline just at bed. Takes the stinging down and doesn't kill my mood. There are options out there. I had to play with the dose a bit due to dizziness but got that managed. Also worth a look at vitamin levels. My neuro was adamant about checking D levels and they were low, very common, a problem for both nerves and chronic pain. I supplement now, figure I need every advantage I can get.

take care, Littlepaw
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (03-07-2015)

advertisement
Old 03-04-2015, 10:52 PM #12
scubaforsythe scubaforsythe is offline
Junior Member
 
Join Date: Feb 2015
Location: NW Ohio
Posts: 63
8 yr Member
scubaforsythe scubaforsythe is offline
Junior Member
 
Join Date: Feb 2015
Location: NW Ohio
Posts: 63
8 yr Member
Default

Legin,
I take Gabapentin 100ml 3 times a day, well I switched it to night, and it works better for me. Sorry to hear it brought you down, I have only been taking it for a couple months, and haven't noticed that happening yet. I find I was more down before I knew what was going on.

Don't give up on climbing that wee hill and enjoying your special spot!!! Hopefully you'll get back up there soon! Are there trails? 1000', wow just wow!! I cannot imagine living near a loch and being surrounded by such beauty! It has been a long time dream to walk the highlands, and am glad you have the opportunity to see it, and I look forward to reading about it when you get to walking it again!!

Take care,
Dawn

Oh and I unfortunately live in flat NW Ohio, where you have corn fields as far as the eye can see... We get excited when you are driving your car and theres a slight hill that just might tickle your belly... pretty sad actually.... lol
scubaforsythe is offline   Reply With QuoteReply With Quote
Old 03-05-2015, 03:52 AM #13
Legin's Avatar
Legin Legin is offline
Junior Member
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Legin Legin is offline
Junior Member
Legin's Avatar
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Default

Littlepaw thanks for that I have vascular clinic next week and planned on talking to gp after that. Just couldn't do the very down thing. Most my life I have supported and counseled people always been the together one it was scarey,
Scubs yes I am lucky, from top of hill I can see Edinburgh, Stirling, the Trossachs and northern gateway, I miss the climb but also just peace and beauty when up there. See just a simple chap.ooooooo hugs im a hugaholic. Toodles
Legin is offline   Reply With QuoteReply With Quote
Old 03-05-2015, 06:40 AM #14
Legin's Avatar
Legin Legin is offline
Junior Member
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Legin Legin is offline
Junior Member
Legin's Avatar
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Default

Oh btw I saw the meds amount my gp had me taking 1200 Gaberpentin at night as in 4 x 300. I started on one tablet and worked up to 3 for sleep well easing the nerve pain and went upto 4 about 6 weeks ago. I became aware i was getting down and cranky but it came to a point where I had to look at why. There are also other issues around.
Legin is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 10:10 AM #15
Legin's Avatar
Legin Legin is offline
Junior Member
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Legin Legin is offline
Junior Member
Legin's Avatar
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Default

A frustrating day not even able to keep shoes on first three toes incredibly sore others as ever numb. Must go to the library for the levitation for dumies
Legin is offline   Reply With QuoteReply With Quote
Old 03-06-2015, 10:18 AM #16
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

Quote:
Originally Posted by Legin View Post
A frustrating day not even able to keep shoes on first three toes incredibly sore others as ever numb. Must go to the library for the levitation for dumies
Ah the quest for tolerable shoes. Don't know how many pairs I've had to try, some that seem to work but only for 30 minutes, others impossible to keep on 5 seconds, then blissfully about 3 pair that seem okay....

Littlepaw
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (03-07-2015)
Old 03-07-2015, 05:15 AM #17
Legin's Avatar
Legin Legin is offline
Junior Member
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Legin Legin is offline
Junior Member
Legin's Avatar
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Default

Warmer weather soon then barefoot. Right now cold is sucked into foot like a black hole

Last edited by Legin; 03-07-2015 at 06:12 AM.
Legin is offline   Reply With QuoteReply With Quote
Old 03-07-2015, 07:58 AM #18
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
8 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
8 yr Member
Default

Quote:
Originally Posted by Littlepaw View Post
Ah the quest for tolerable shoes. Don't know how many pairs I've had to try, some that seem to work but only for 30 minutes, others impossible to keep on 5 seconds, then blissfully about 3 pair that seem okay....

Littlepaw
I took quite quickly to hard-soled slippers. They seem to have the most give. The hardest part is finding some that don't really look like slippers, which is becoming easier, actually. Being a nurse in an assisted living facility (LOTS of walking), I've been wearing slippers for shoes years before my RSD diagnosis. My supervisor would call them my "almost shoes".
__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
Always_Believe is offline   Reply With QuoteReply With Quote
Old 03-13-2015, 06:31 AM #19
Legin's Avatar
Legin Legin is offline
Junior Member
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Legin Legin is offline
Junior Member
Legin's Avatar
 
Join Date: Feb 2015
Location: Scotland
Posts: 32
8 yr Member
Default

Wee update. Yesterday attended vascular clinic had all tests re swelling and colour all nae problem but I was sure would be the case. Foot v v sore with every step and when lady put probe to measeure pulse in ankle I almost kicked her, involuntarily honest.
After much ear bashing from the wifffffff went to gp today have been perscribed pregabalin and tramadol upped. Oh happy days.
On the plus side its a beautiful day and whilst what was a 7 min walk took 40 I basked in the sun, so life aint that bad. Looking forward to resumption of boat bus to island cant reach my thinking rock but the island is bonny and peaceful.
Legin is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Nerve problems and pain Legin Peripheral Neuropathy 5 04-08-2015 03:07 AM
Nerve problems and pain Legin New Member Introductions 7 03-03-2015 03:28 PM
MS, Chronic nerve pain and pain pump surgery Sissyt213 Medications & Treatments 1 01-23-2014 07:54 PM
Nerve problems FirstOldOne Peripheral Neuropathy 8 02-18-2013 08:30 PM
Topamax Use for Nerve Pain is Causing Eye Problems GJZH Chronic Pain 6 12-23-2006 07:46 PM


All times are GMT -5. The time now is 04:21 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.