NeuroTalk Support Groups - How do you cope with the loss/ grief?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - How do you cope with the loss/ grief? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/217150-cope-loss-grief.html)

Quote:

Originally Posted by maygin (Post 1128592)

Thank you all for your posts. I am inspired now to take the risk and attend the art class I really want to go to. But it requires a train ride and I've never taken the train. I worry about it flaring me up since right now the buses and the potholes are causing problems for me. But this is a rare opportunity to learn a new art technique from my favorite artist. It is more money then I would normally spend on myself, but I only have this one life. In 5 years, I might wake up and not be able to use my arms. I don't want to regret that I didn't spend some time creating beauty with fiber just because I was scared of a train ride and spending a little money. I woke up on Saturday and deeply regretted not spending more time on the potter's wheel. I don't feel like I used my "healthy" time well. I want this new life to be different. I want to be able to say that I lived. But first, I have to go through this grieving. Thank you all so very much. These posts have helped tremendously. :grouphug:

This is amazing.

You may not see the whole thing now but it's clear as day. Your words have a powerful impact on me, too.:)

Before buying a ticket, see if they have different classes available. On Amtrak, I've found Business class is a much easier ride. I'm not sure if it's just the seats or also the suspension? It's also quieter and less crowded.

I also bring headphones and calming music, along with a down pillow to rest my arm on to help cradle it from vibrations.

I can so relate to just about all you say. 6 years ago I had a major car accident, it took them 4 hours to cut me out as basically the car was wraped around me. The day before I played squash as I did at least 3 times a week. Since then I havent played squash nor climbed much due to balance condition then failing hips all of which I believe the crash was the catalyst. So from a v fit active and at times nutter im now me. I got married a few years ago and was well traumatised when I saw me moving about on video. I was old disabled and a shadow of the man a few years earlier, belive me I went into a dark lonely pit,
now yup I get annoyed and angry with frustration, but suddenly alk about me has so much more. Eg I drove every where now im a passenger and see so much more than I saw zooming from A to B, Recently took a long train journey I would have driven before. Had the best time met some really interesting people on the train, Can I stil be me yup still gave my seat up to a lady and her young child she said noooo at first as she saw me get on with my adapted walk I just said I have been giving up seats for 40 years and not going to stop now.
So my message is adapt notice things you missed before, what makes us grow is our need to grow and improve yup we have lost a lot but there is a whole world of new things out there to explore